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Name: Randy
Age: 51
Diagnosed in: 2007
Treatments: 3 surgeries, 1st for hemangioblastoma in cerebellum, 2nd and 3rd for oligodendroglioma in right parietal
Tumor Type: Oligodendroglioma
Notes: Diagnosed with two low-grade tumors, oligodendroglioma in parietal lobe and hemangioblastoma in cerebellum. Very fit and active, had a general seizure out of the blue. MRI saw two spots and scheduled surgery for cerebellar tumor first, full resection. 2nd surgery for oligo was more complicated so first did a partial resection, then went to another treatment center for full resection using iMRI guided surgery. Had some left sided paralysis, physical therapy really helped. He is doing great, married, works full-time, swims a lot and enjoys yoga. He is, "hoping to help others battling this type of tumor".
Medications: Keppra, Trileptol
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Name: Randy
Age: 51
Diagnosed in: 2007
Treatments: 3 surgeries, 1st for hemangioblastoma in cerebellum, 2nd and 3rd for oligodendroglioma in right parietal
Tumor Type: Hemangioblastoma
Notes: Diagnosed with two low-grade tumors, oligodendroglioma in parietal lobe and hemangioblastoma in cerebellum. Very fit and active, had a general seizure out of the blue. MRI saw two spots and scheduled surgery for cerebellar tumor first, full resection. 2nd surgery for oligo was more complicated so first did a partial resection, then went to another treatment center for full resection using iMRI guided surgery. Had some left sided paralysis, physical therapy really helped. He is doing great, married, works full-time, swims a lot and enjoys yoga. He is, "hoping to help others battling this type of tumor".
Medications: Keppra, Trileptol
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Name: Ashley
Age: 30
Diagnosed in: 1999
Treatments: 4 surgeries, craniotomy, burhole evacuation. Tunnel shunt placement and removal
Tumor Type: Pilocytic Astrocytoma
Notes: Very little movement in left arm. Uses massage therapy for symptom management. Loss of left peripheral visual fields. Works as a Neurological Rehabilitation Social Worker. Update 2009: Doing great and celebrated her 10 year survivorship!
Medications:
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Name: Ed
Age: 39
Diagnosed in: 1996
Treatments: Chemotherapy (Temodar), radiation therapy
Tumor Type: Mixed Glioma
Notes: Oligo/astro tumor located in lower left hemisphere in occipital lobe. First MRI showed small tumor and thought benign, then biopsy showed oligo/astro mixed glioma grade II, in 2006 it graduated to a grade III found through biopsy. Actively surveying tumor growth and still on Temodar, Keppra, and Lamictal. Family supported him through the process and has one daughter. Takes exercise and diet more seriously and needs a 2 hour nap everyday. Update 2009: Taking Temodar for 3 1/2 years and tumor has shrunk by 1 cm.
Medications: Keppra, Lamictal
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Name: Jeff
Age: 57
Diagnosed in: 1996
Treatments: Surgery, chemotherapy, radiation therapy
Tumor Type: Glioblastoma Multiforme (GBM)
Notes: Tumor located near motor cortex, participated in clinical trials, gets MRI every three months, currently a support group leader. Still experiences migraines. Stays fit, acupuncture, meditation, yoga and exercise.
Medications: PCV (BCNU and Vincristine), Carboplatin and Thalomid, decadron
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Name: Joseph
Age: 50
Diagnosed in: 2005
Treatments: 2 surgeries
Tumor Type: Oligodendroglioma
Notes: Tumor in left temporal lobe; had a very negative experience with 1st surgery including mis-diagnosed pathology, went for second opinion and 2nd surgery with a different neurosurgeon and now receiving excellent care; has other medical issues including diabetes and systemic degenerative arthritis; now semi-retired, worked for over 20 years in mental health and human services.
Medications: Keppra and Trileptal
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