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Skate Against Brain Tumors

August 1, 2010
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August 14, 2010
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Tumors Suck Paintball Benefit

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Name:	Timothy
Age:	33
Diagnosed in:	2003
Treatments:	2 surgeries; currently taking Temodar (plans to take 18 cycles)
Tumor Type:	Oligodendroglioma
Notes:	After 1st (and only) seizure, had 1st surgery and was diagnosed with a grade II tumor; had a recurrence and a 2nd surgery, 2nd pathology came back as a grade III. Has been taking Temodar, having little to no side effects, and is feeling very well. Very active, runs marathons and raises funds for brain tumor research. Updated 2010: 3rd surgery followed by radiation therapy.
Medications:	Keppra

Name:	Tom
Age:	42
Diagnosed in:	1997
Treatments:	4 surgeries, chemotherapy (Hydroxyurea/Gleevec and Temodar).
Tumor Type:	Anaplastic Astrocytoma
Notes:	He had a seizure, scheduled first surgery 3 days later in NYC. Has had 3 more resections since then. Anti-seizure meds make him feel fatigued. Has had some left-sided weakness, when tired his speech can be harder to understand. He has incorporated holistic medicine into life with energy work and immune system boosting. He has been asked to be on a few patient advisory boards, can share his perspective on the pros and cons of radiation therapy.
Medications:

Name:	Peter
Age:	67
Diagnosed in:	1994
Treatments:	Surgery, radiation, chemo (PCV)
Tumor Type:	Glioblastoma Multiforme (GBM)
Notes:	Retired and doing well, he is active in support groups and braintmr listserv. He believes that support systems are a mus and has participated in a group about long-term survivorship. Peter is a 15 plus year survivor and "is still going strong". Read more about Peter here.
Medications:

Name:	Kelli
Age:	35
Diagnosed in:	2006
Treatments:	Surgery (craniotomy)
Tumor Type:	Pilocytic Astrocytoma
Notes:	Symptoms included low hormone counts, MRI showed tumor in hypothalamus touching optic chiasm. Found a Dr. she felt comfortable with, surgery 2 months later. Recovered really well, in ICU 3-4 days, went home and had seizure from low sodium levels. Hardest part was dealing with additional diagnosis of Diabetes Insipidus from surgery and rapid weight gain after surgery. She works part time, is married, and has a daughter. Tumor has regrown almost to it's original size and is being closely monitored. She hopes she can, "help someone be less confused or calm their fears".
Medications:	Low-dose Synthroid, DDAVP

Name:	Rebecca
Age:	23
Diagnosed in:	2004
Treatments:	Surgery, radiation therapy
Tumor Type:	Ependymoma
Notes:	She had vertigo while swimming competitively, eventually referred to a neurologist who ordered an MRI and saw the tumor in her 4th ventricle at age 17. Had surgery and radiation; experienced double vision for 2 months following surgery and nausea during radiation treatment, which has resolved. She formed a brain tumor support group in high school for teenagers and is now applying to medical school. Now, she feels great, still swims a lot, and is looking forward to "helping others going through a similar experience".
Medications:

Name:	Amy
Age:	30
Diagnosed in:	2003
Treatments:	Surgery, chemotherapy (Temodar), radiation therapy
Tumor Type:	Oligoastrocytoma
Notes:	She was in dental school, had headaches and thought stress related. Then a stiff neck and headache led her to think it was meningitis. Eventually went to ER after vomiting and CT found mass in right occipital, Drs first thought AVM, but an angiogram showed tumor. Went in for surgery and had a full resection. She went back to dental school and is now a periodontist full time. She gets an MRI every 6 months and is doing really well. She is married and her family is very supportive. She would, "love to provide compassion and support for those dealing with this diagnosis".
Medications:

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