National Brain Tumor Society - Public Policy and Advocacy Update
White House Cancer Moonshot Task Force Announced
National Brain Tumor Society congratulates the administration for the launch of the Task Force, and for the urgency with which it was formed. We are particularly encouraged by the section of the memorandum that calls for continued engagement with diverse stakeholders in the cancer research community, including patient groups and nonprofits, such as NBTS. Indeed, NBTS has been honored and privileged to already meet with, and subsequently submit detailed recommendations to, the vice president’s office. As the largest and leading nonprofit patient advocacy and research funding organization in the field of brain tumors/brain cancer, the type of cancer which took the vice president’s son, Beau, we believe we have inimitable insight into specific steps that can be taken that will not only advance brain cancer research – an areas of high unmet, yet urgent, medial need – but which would also benefit the entire oncology field.
Read our full statement here and stay tuned for more updates in the coming months.
2016 Legislative Agenda
Save the Date! Head to the Hill 2016
No previous experience is necessary. All you need to participate is a passion for fighting brain tumors and the most powerful tool - your voice. We look forward to having you join us to help policymakers better understand the needs of our community and advocate for the policies that are essential to ensuring availability of treatments, increased scientific research, and the discovery of a cure.
Look for registration to open in February. For now, mark your calendars! If you have any questions, please contact us at firstname.lastname@example.org or 617.231.6310.
Thank Your Members of Congress!
Now, we’re asking for you to contact your members of Congress again, this time to thank them for making an investment in medical research. It will only take a minute to write a note and make sure they know we will be here not only to ask for their support, but also to express our thanks when they provide it. Thank your members of Congress now!
Public Policy & Advocacy Staff Transitions
According to Lainey, “It has been an honor and privilege to work with so many of you to find better treatments and a cure for brain tumors, and I will be forever changed by all of you and your stories. I know that you will continue to make an impact in the coming years through public policy advocacy, and I look forward to joining you in the fight.”
Thank you again for all your support and advocacy!