National Brain Tumor Society Public Policy and Advocacy Update
Vol. 5, No. 3
Sign Up Today for Head to the Hill
Sign Up Today for Head to the Hill – Make it the Largest Brain Tumor Advocacy Event Ever!
It is not too late to join us in the fight against brain tumors on Capitol Hill, May 4-5. Registration is open for a couple more days until April 3. You can register by visiting the Head to the Hill website.
Head to the Hill brings together all stakeholders in the brain tumor community for a two-day event that ensures our collective voice is heard in the halls of Congress. Day one consists of an issues and advocacy training conducted by National Brain Tumor Society staff and our State Lead Advocates. On day two, advocates go to Capitol Hill and meet with the offices of their Senators and Representatives and urge them to make the fight against brain tumors a top priority in this Congress.
Educating Congress about Precision Medicine and Brain Tumors
We thank Lisa Peabody, Maryland brain tumor advocate, and Gina Memmott, Virginia State Lead Advocate, for helping to round up approximately 60 congressional staff to hear from a group of speakers including Dr. Daniel Brat, a nationally recognized neuropathologist at Emory University and one of the researchers studying molecular characteristics of brain tumors based on a highly successful federal program called The Cancer Genome Atlas. We thank the Pancreatic Cancer Action Network for their work in organizing the congressional briefing.
Next Steps with Appropriations for Research
· Increase NIH funding to $33 billion and NCI to $5.4 billion
· Ensure that NCI gives priority to the Pediatric Brain Tumor Research Consortium, Pediatric Preclinical Drug Testing Program and Pediatric genomics based MATCH trial
· Ensure that the Department of Defense’s Congressionally Directed Medical Research Program includes Pediatric Brain Tumors in the Peer Review Medical Research Program
Please be on the look out for an action alert to send your letter to Congress asking for our appropriations requests for the next fiscal year.
Fighting for Faster Drug Approvals and Better Treatments: The 21st Century Cures Initiative
Please also be on the look out for a special educational email about accelerating and improving drug development through legislative efforts followed by an action opportunity over the next four to six weeks.
Thanks again for all your support and advocacy. Together we are making a difference.