Advocate For Change

Advocate for policy

Fighting for more resources and new public policies to improve quality of life for all those affected

Ensuring better patient access to essential health care is critical to the needs of our community. Working alongside regulators and policymakers, we believe education is key to improving the lives of all those affected by brain tumors, and essential for change.



Let your voice be heard – join us and take action on critical issues affecting the brain tumor community today.


Head to the Hill 2015

On May 4 – 5, 2015, more than 200 advocates from 38 states brought their voices to Congress for Head to the Hill 2015


Advocacy tools

Become more informed about key public policy issues and learn how to educate your elected officials.

From the Blog

  • November 19, 2015

    Tsunami: Trial of a brain tumor


    Arthur Weinfeld’s vision was in decline. His right eye had become blurry, which made focusing on a sheet of music difficult. At 77, he assumed it was a cataract. With little del

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  • November 18, 2015

    GBM AGILE: A Community Galvanized


    “GBM is just unacceptable…we no longer accept the status quo.” – Dr. Anna Barker Last week, you likely took notice of the press release, guest blog from Dr. Anna Barker, and a flurry of social media activity related to the announcement of

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  • November 6, 2015

    Survey Results: Brain Tumor Treatment & Diagnosis

    July 22, 2010

    Remember back in the summer of 2014 when we asked you to fill out our Patient and Caregiver Survey? Well we sure do, as your participation in this survey has provided not only us, but also the FDA, researchers, clinician, and drug makers

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