Advocate for Change

Advocate for policy

Fighting for more resources and new public policies to improve quality of life for all those affected

Ensuring better patient access to essential health care is critical to the needs of our community. Working alongside regulators and policymakers, we believe education is key to improving the lives of all those affected by brain tumors, and essential for change.

HEAD TO THE HILL

Let your voice be heard - join us and take action on critical issues affecting the brain tumor community today.

Advocate tools and training

Advocacy tools

Become more informed about key public policy issues and learn how to educate your elected officials.

Latest news

Latest Public Policy News

Stay up to date on the latest in brain tumor research funding, access to care, and advocacy efforts across the community.

From the Blog

  1. July 23, 2014

    Guest Blog: Fighting for Change

    Guest blogger Lisa Peabody is a volunteer advocate with the National Brain Tumor Society. Recently, she joined National Brain Tumor Society staff participating in the annual Alliance for Childhood Cancer Action Day. I get on the Metro headed to the Capital Hill stop. I’m wearing my ‘walking’ shoes even though I’m dressed conservatively and professional. [...]

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  2. July 10, 2014

    A “Full Force” Effort to Defeat GBM

    The Defeat GBM Research Collaborative is the National Brain Tumor Society’s largest and boldest strategic research initiative to date*. The initiative aims to significantly improve the survival rate of patients who are battling glioblastoma multiforme (GBM). Through robust collaborations comprised of leading GBM researchers, multiple and synergistic projects are driven by investigator teams with proven [...]

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  3. July 10, 2014

    #BTSM Chat: Patients and Caregivers Discuss What They’d Like to See Addressed in New Treatments

    The first Sunday of each month brain tumor survivors, patients, family, and caregivers use Twitter to share experiences, ideas, and information. The Brain Tumor Social Media chat (#btsm) was started a little over a year ago by Liz Salmi.  The chats are moderated by Liz and Catherine Blotner and is promoted as a “patient-run Twitter [...]

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