Glioblastoma multiforme (GBM) is a highly aggressive, complex, and devastating form of brain cancer, effecting hundreds of people each day. We believe it is our duty to accelerate progress against this disease so we launched the Defeat GBM Research Collaborative in 2013 with the intent to double the 5 year survival rate of GBM patients. This comes at a time when collaboration is becoming the norm and the abundance of genomic data is accelerating diagnostic, prognostic, and therapeutic progress.
Oligo Research Fund
Oligodendroglioma (oligo) is a relatively rare brain tumor representing about 6% of gliomas, with a diagnosis rate of about 1,150 patients a year in the U.S. alone. Critical research is required to deliver oligo patients new therapies that are more durable and extend their lives. In order to make effective, targeted therapies a reality it is essential to identify and understand the molecular drivers of the tumor’s genesis and maintenance, as well as resistance.
Our new pediatric initiative, Project Impact, will leverage increases in knowledge gained from earlier funded research efforts, and develop a program that can address critical barriers to progress within the drug discovery and development pipeline through an integrated approach to advance research toward new treatments for pediatric brain tumor patients.
The Community Research Fund allows contributors to pool donations to support research on a specific type of tumor. This program leverages a team of highly experienced, nationally-recognized scientific experts, working with National Brain Tumor Society staff, to determine the best investment strategy for each fund.
From the Blog
July 23, 2014
Guest Blog: Fighting for Change
Guest blogger Lisa Peabody is a volunteer advocate with the National Brain Tumor Society. Recently, she joined National Brain Tumor Society staff participating in the annual Alliance for Childhood Cancer Action Day. I get on the Metro headed to the Capital Hill stop. I’m wearing my ‘walking’ shoes even though I’m dressed conservatively and professional. [...]Read more |
July 10, 2014
A “Full Force” Effort to Defeat GBM
The Defeat GBM Research Collaborative is the National Brain Tumor Society’s largest and boldest strategic research initiative to date*. The initiative aims to significantly improve the survival rate of patients who are battling glioblastoma multiforme (GBM). Through robust collaborations comprised of leading GBM researchers, multiple and synergistic projects are driven by investigator teams with proven [...]Read more |
July 10, 2014
#BTSM Chat: Patients and Caregivers Discuss What They’d Like to See Addressed in New Treatments
The first Sunday of each month brain tumor survivors, patients, family, and caregivers use Twitter to share experiences, ideas, and information. The Brain Tumor Social Media chat (#btsm) was started a little over a year ago by Liz Salmi. The chats are moderated by Liz and Catherine Blotner and is promoted as a “patient-run Twitter [...]Read more |