First-of-its-kind Briefing for Congress on Glioblastoma On the heels of our annual advocacy day on Capitol Hill in Washington, D.C., Head to the Hill, where we bring volunteers from across the country to speak with members of Congress about the policies and bills that the brain tumor community would like to see policymakers support, National Brain Tumor Society (NBTS) held a […] May 22, 2018
Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018
Thank you for being on our team – BTAM 2017 Brain Tumor Awareness Month (BTAM) in 2017 was all about taking action together. To many in the brain tumor community, awareness isn’t the sole issue, it’s finding ways to connect raising the profile of this disease with getting people take action. At the National Brain Tumor Society, we wanted to provide you with activities and […] June 1, 2017
Guest Blog: Navigating the Brain Tumor Journey as Part of a Community Nancy Cincotta is the Psychosocial Director, Camp Sunshine* at Sebago Lake. Regardless of where you are in life, a diagnosis of a brain tumor is daunting. You and your family may feel disconnected from the world you had previously been part of, and a new journey rapidly begins. Within the context of this new narrative, your […] May 26, 2017
It IS Brain Surgery: Part II – A Patient Perspective In Part I of this expert series on neurosurgery (brain surgery) we discussed the purpose of this series, and heard from a neurosurgeon about the basics of brain tumor surgery. Today, we hear from a patient that has experience how difficult this experience can be, but how the challenges can be overcome. It was during […] May 24, 2017