NBTS Brain Tumor Clinical Trials Report: Q4 2021 It can be hard to keep track of new clinical trial opportunities opening across the United States, especially as we continue to navigate the public health crisis created by the coronavirus (COVID-19). There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started […] January 13, 2022
Advocacy in Action: Updates on the Childhood Cancer STAR Act and Childhood Cancer Data Initiative The Childhood Cancer STAR Act and Childhood Cancer Data Initiative (CCDI) are major federal government-led initiatives that exist in part because of years of advocacy work by members of the brain tumor and childhood cancer communities. As we reflect back on Childhood Cancer Awareness Month (CCAM) this past September, we want to share updates on […] October 8, 2021
NBTS Brain Tumor Clinical Trials Report: Q3 2021 It can be hard to keep track of new brain tumor clinical trial opportunities opening across the United States, especially as we continue to navigate the public health crisis created by the coronavirus (COVID-19). There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened […] October 5, 2021
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
Announcing the Ependymoma Fund for Research & Education Dear Friend of the Brain Tumor Community, We write to share with you that the Collaborative Ependymoma Research Network (CERN) Foundation and the National Brain Tumor Society (NBTS) have entered into a formal collaborative effort to raise financial support for ependymoma research and education. Statistically rare, ependymomas occur in both adults and children and, unfortunately, […] December 17, 2019