New Treatment Approved for Certain Glioma Patients On June 22, 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The FDA approved the combination of two oral drugs called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist) for the treatment of advanced tumors […] June 28, 2022
Advocacy in Action: Updates on the Childhood Cancer STAR Act and Childhood Cancer Data Initiative The Childhood Cancer STAR Act and Childhood Cancer Data Initiative (CCDI) are major federal government-led initiatives that exist in part because of years of advocacy work by members of the brain tumor and childhood cancer communities. As we reflect back on Childhood Cancer Awareness Month (CCAM) this past September, we want to share updates on […] October 8, 2021
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
Guest Blog: “I would have given anything to trade places with him” On a family vacation in 2011, Mac tried to catch a seagull. Using his boogie board to shield his movements, he inched his way across the sand, closing on his target. With the determination and strong-will that defined him, Mac patiently stalked his target for 20 minutes, taking great care with each step as to […] September 5, 2019
SNO-Cap 2018: Recapping The Annual Meeting and Education Day of the Society for Neuro-Oncology The Annual Meeting and Education Day of the Society for Neuro-Oncology (SNO) continues to grow. Each of the last few years, SNO has reported new records for conference registration, attendees, and the number of presentations submitted for consideration. The 23rd annual SNO meeting in New Orleans, LA from Thursday, November 15 through Sunday, November 18 […] December 17, 2018