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The last 7 years.

Published on October 22, 2018 in Share Your Story

Hi, my name is Lisa.

I am 49 and had a 11 hour operation 7 years ago to remove a huge mengoma brain tumour.. thank God it was benign and my kids have they mum.. but still life has changed so much…

I have been left with headaches every minute of every day.. my medication I have tried…. has stopped working as my body has got use to it.
4 weeks ago I had a ketamine infusion and I feel this has helped … hasn’t got rid of them but made more bearable… at least now I’m not in bed 5 days out of 7 .. only 2 or 3 so that is a bit better … the headaches are still there but I can deal with them a bit better .. but what happens when it wears off and I have to wait at least 3 months for another one….

We are here to tell the tell but life has changed so much…..during my operation I hemridged and my surgeon had to put some screws in my head… but though a nerve instead… not his fault he saved. My life but it Hurts……
Can’t work … lost all confidence… and can’t stand anything loud…
I feel a burdon to everyone
Cancel everyone and everything…
People can’t see pain… I haven’t got A broken leg which people can see….
I’m going to were a badge…..
Life is for living I wish I felt well enough to live it ….

Good luck everyone
Xxx xxx


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

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