I’m Fueling Awareness: Adam & Whitney Hayden
When Adam Hayden was first diagnosed with a glioblastoma at only 34 years old (much younger than the 64 year average age of GBM diagnosis) in 2016, he didn’t want to be defined as a person with cancer. He still wanted to be known as the dad, writer, deep thinker, and light-hearted friend that made him him. Eventually, however, Adam felt compelled to share his story, realizing that identifying himself as someone with cancer didn’t supercede those other characteristics, but rather he could incorporate who he was with his advocacy.
Starting with his blog, Glioblastology, Adam has been raising awareness about living with an advanced cancer like GBM in guest blogs; papers in esteemed academic medical journals; op-eds in biomedical trade publications; and at major academic medical and scientific conferences all over the country in front of leaders from cancer centers, the National Cancer Institute, the U.S. Food and Drug Administration, and biopharmaceutical companies. He’s now even writing a book.
“I feel my strongest telling my story, building relationships with newly diagnosed patients, survivors, and caregivers, and sitting in the congressional offices of our elected officials reinforcing the urgent needs of the brain tumor community,” says Adam.
As Adam was finding his purpose and an outlet through public speaking and writing about his own experience with GBM, so to did his wife, Whitney. Much like her husband, Whitney has brought comfort and a certain kind of kindred bond to other care partners of advanced cancer and brain tumor patients through her powerful blog entries which speak to the challenges a brain cancer caregiver experiences. in one poignant post noting: “I worry that I haven’t told my children enough about Adam’s diagnosis and they will resent me for it. I worry they’ve seen too much for their young ages, already…I worry that I work too much and that I’m losing precious time with him. I worry that I don’t work enough because we have so much debt…I worry that Adam is working himself too much helping others and not thinking about me and the kids and himself. I worry that the thing I just typed above is a selfish thought.”
Together, Adam and Whitney have brought the unvarnished realities of glioblastoma to life for hundreds of thousands of readers,listeners, and viewers — the good, the bad, and the ugly. And in a profound way.
Adam and Whitney are FUELING AWARENESS & COMMUNITY using their voices to provide support and advance the needs of brain tumor patients, caregivers, and survivors.
Give today to help fuel a new decade for new breakthroughs
Through recent funded research by the National Brain Tumor Society and others, we now know more about brain tumor biology than ever before. Make a gift today to help translate this cutting-edge research and knowledge into transformative treatments that patients and their families deserve.