Defeating GBM:
A Virtual Town Hall

Defeating GBM: A Virtual Town Hall is a live event that will allow patients, caregivers, researchers, providers, policymakers, and regulators to connect from across the country. This is a critical opportunity to hear from the frontlines of GBM research, including how our government agencies play a vital role in funding, coordinating, and advancing research; what’s happening in the lab of a leading expert on GBM; the patient perspective; as well as how the National Brain Tumor Society is working to defeat GBM.

Featured Panelists

Defeating GBM: A Virtual Town Hall was recorded and can be viewed at any time. Watch now. Please see a list of panelists and speakers below.

Eric Lipton

Moderator

Eric Lipton is a Pulitzer Prize-winning investigative reporter at The New York Times, based in the Washington Bureau. He has been a working journalist for three decades, with prior stints at The Washington Post and the Hartford Courant, and he is also the co-author of a history of the World Trade Center. His sister, Michelle Lipton, died of glioblastoma in 2013.

Dr. Ned Sharpless

Director,
National Cancer Institute

Norman E. “Ned” Sharpless, M.D., was officially sworn in as the 15th director of the National Cancer Institute (NCI) on October 17, 2017. Prior to his appointment, Dr. Sharpless served as the director of the University of North Carolina (UNC) Lineberger Comprehensive Cancer Center, a position he held since January 2014. Dr. Sharpless was a Morehead Scholar at UNC–Chapel Hill and received his undergraduate degree in mathematics. He went on to pursue his medical degree from the UNC School of Medicine, graduating with honors and distinction in 1993. He then completed his internal medicine residency at the Massachusetts General Hospital and a hematology/oncology fellowship at Dana-Farber/Partners Cancer Care, both of Harvard Medical School in Boston. After 2 years on the faculty at Harvard Medical School, he joined the faculty of the UNC School of Medicine in the Departments of Medicine and Genetics in 2002. He became the Wellcome Professor of Cancer Research at UNC in 2012. Dr. Sharpless is a member of the Association of American Physicians and the American Society for Clinical Investigation. He has authored more than 160 original scientific papers, reviews, and book chapters, and is an inventor on 10 patents. He co-founded two clinical-stage biotechnology companies: G1 Therapeutics and Sapere Bio (formerly HealthSpan Diagnostics). He served as Acting Commissioner for Food and Drugs at the US FDA for seven months in 2019, before returning to the NCI Directorship.

Dr. Richard Pazdur

Director, Oncology Center of Excellence,
Food and Drug Administration

Richard Pazdur, M.D., is the director of the FDA’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with expertise in drugs, biologics, and devices to expedite the development of novel cancer products. In his role as director of the OCE, Pazdur is responsible for leading the effort to develop and execute an integrated regulatory approach to enhance the cross-center coordination of oncology product clinical review.

Dr. Susan Chang

Director, Division of Neuro-Oncology,
UCSF Brain Tumor Center

Director,
UCSF Neuro-Oncology Gordon Murray Caregiver Program

Co-Director,
Sheri Sobrato Brisson Brain Cancer Survivorship Program

Dr. Susan Chang is an active member of the multidisciplinary Brain Tumor Center at the University of California, San Francisco, with a major research focus on the development of novel therapies for patients, as well as the assessment of novel imaging markers of prognosis and response to therapy. She is currently the principal investigator and co-investigator on more than 15 active clinical trials that evaluate the wide spectrum of therapeutic interventions that span chemotherapy, targeted agents, immunotherapy,
and convection-enhanced delivery of novel agents. As Program Leader for the Neuro-Oncology Program at the Helen Diller Family Comprehensive Cancer Center, her role is to provide the overall direction of the program and facilitate the interaction of the basic science and translational research programs with the clinical team to bring novel findings from the lab to the patient. She is the Co-PI of UCSF’s SPORE project, lead PI of an NIH P01 grant focused on novel imaging, and serves as the Director of the Glioblastoma Precision Medicine Program. In addition to her research efforts, Dr. Chang has also created novel supportive care programs such as the Gordon Murray Caregiver program and the Sheri Sobrato Brisson Brain Tumor Survivorship Program, both developed to enhance the care of patients and families.

David Arons, JD

Chief Executive Officer,
National Brain Tumor Society

David Arons is the Chief Executive Officer of the National Brain Tumor Society. He previously served in leadership and external positions at the American Cancer Society in Minnesota, the Center for Lobbying in the Public Interest, and Independent Sector. As an attorney, he has represented patients facing disabilities and serious health conditions. He served on the National Cancer Institute’s Council of Research Advocates and Clinical Trials Advisory Committee. In 2016, Mr. Arons was named to the Blue Ribbon Panel of experts selected to help advise the National Cancer Moonshot, led by former Vice President Joseph Biden.

Adam Hayden

Adam Hayden, MA, is a writer, speaker, advocate, and organizer. A husband and father of three young boys, Adam has been living with a glioblastoma brain tumor since 2016. Adam has been involved with the National Brain Tumor Society as an advocate since 2017, and in 2019 began co-moderating NBTS’s virtual peer-to-peer support service, The Brain Tumor Support Conversations. Additionally, Adam has spoken at a number of research meetings and symposiums related to brain tumors and cancer, including at NBTS Research Roundtable meetings. He blogs about philosophy, illness, and healthcare on his personal blog, Glioblastology. Adam is an active member of the brain tumor, cancer, and healthcare communities on social media, where he can be found as @adamhayden.

Dr. Patrick Wen

Director, Center for Neuro-Oncology,
Dana-Farber Cancer Institute

Dr. Patrick Y. Wen is Professor of Neurology at Harvard Medical School and Director of the Center For Neuro-Oncology at Dana-Farber Cancer Institute. He is the immediate past President of the Society For Neuro-Oncology and former Editor-In-Chief of Neuro-Oncology. His research interest is novel therapeutics for brain tumors, as well as novel clinical trial designs and response assessment and endpoints in clinical trials. He chairs the National Brain Tumor Society’s Medical Advisory Board.

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