Honor: Read Our Stories and Share Yours

GBM is a monster of a disease. It takes so much from those that are affected — patients, families, caregivers, and loved ones. In the face of a glioblastoma diagnosis, families rely on love, hope, and the promise that research is advancing toward a cure. Every patient and family is different, each with their own journey, but all deserve recognition and action to defeat GBM. On the first annual Glioblastoma Awareness Day in the United States, we ask you to take one day to honor these patients, those we’ve lost, and their families.

        • David Arons


          By Rachel Schultz, Director of Development, New England Region

          August 9, 2016 is the last time I saw my wonderful, kind, caring, lovable, singing-in-falsetto, Boston-sports-loving father alive. On August 11, he passed away at the age of 69 after being diagnosed with a glioblastoma (GBM). Sadly, this was not my first experience with GBM. Twenty years earlier, my maternal grandfather was taken by this terrible disease. He was also 69 at the time of his passing. Both men had a huge impact on my life and were taken far too soon. They received the same diagnosis, had virtually the same treatment plan, and as a result, unfortunately, had the same outcome, as well.

          TWENTY years later and the same result? TWENTY years later and no new or significantly approved treatment options? How can this be? READ MORE

        • Superman


          By Adrienne Wilk

          One can browse the local section of a newspaper on any given day and see numerous obituaries written using the phrase, “they lost their battle with cancer.” But this is a misrepresentation of everyone who has ever fought cancer. So many, including my father, Bob Bard, won their battle with cancer in spite of their passing. It’s how you live – and not how you die – that makes the victory.

          On January 19, 2010, Dad was diagnosed with brain cancer. Healthy all of his life, this diagnosis came as a shock. The first three weeks were filled with waiting, uncertainty, brain surgery, and then the crushing pain when the diagnosis was confirmed. Dad had cancer. Not only did he have cancer, but a grade IV glioblastoma multiforme, the most aggressive form of brain cancer. At the age of 48, this was simply incomprehensible. Yet, throughout his hospitalization, Dad was overwhelmed by the generosity of our family and friends. Every day people would flock to his room with food, cards, flowers, DVD’s, and most importantly, love and laughter to share. You would have never guessed that the hospital room was filled with family and friends that were just given news of a cancer diagnosis. Cancer did not win. READ MORE

        • Superman


          By Lisa O’Leary

          When it comes to love, they say when you know, you know. Well, my husband and I certainly proved that theory. Patrick and I fell in love hard and fast. I knew he was the one the first time we met for coffee, and he would have been the first to tell you the same. Patrick was the epitome of a gentleman and treated me and everyone around him with the utmost respect.

          In September of 2014, Patrick suffered a seizure that landed him in the ICU. First they thought it was a stroke, then a benign cerebral deformity – all of which were scary but we knew at the end he would be okay. Unfortunately, they were wrong, and a short time later Patrick was diagnosed with glioblastoma. I promised him I would never leave his side and took a leave of absence from my job to assume the role of caretaker. READ MORE and Read More of Her Personal Story Here.

Give today for GBM Awareness Day

On GBM Awareness Day, we honor survivors, care partners, and researchers like those above. There is no question that the urgent and unmet needs of the GBM community continue to grow.

With such limited progress made in treating these aggressive and complex tumors, we know that the time to act is now. Make a gift today, and help to accelerate the rate at which we discover, develop, test, and approve new treatments, while working together to advance a cure.