Looking back at progress made in 2020
In a year like no other, you — our brain tumor community — have been simply amazing and inspiring.
When the pandemic spread in the early spring, there were a lot of questions, a lot of uncertainty, and a lot of worry, especially for those of us in the brain tumor community. Thanks to you, your organization — the National Brain Tumor Society — quickly adapted, putting patients and caregivers first.
- We kept our work toward a cure moving.
We launched new, promising research projects focused on pediatrics and adults. We virtually gathered with neuro-oncology leaders across major hospitals, the NIH, the FDA, and biopharmas to develop specific action plans to enable clinical trials to continue. And the NBTS-supported GBM AGILE clinical trial program actually expanded.
- We stayed connected and informed in a socially distant world.
We moved all of our events online, including Head to the Hill and Glioblastoma Awareness Day, we started monthly virtual Brain Tumor Support Conversations, and we curated brain tumor-specific resources to help patients understand the impact of COVID-19 on their lives and treatment.
- We influenced Congress and secured funds for brain tumor research.
We adapted our entire advocacy program to successfully influence Congress and secure millions of dollars for brain tumor research through the federal government, and pass by unanimous vote in the U.S. Senate, the Glioblastoma Awareness Day resolution.
That said, the National Brain Tumor Society was not able to launch some of its most promising research projects this year, due to the single greatest drop in revenue we have ever faced as a result of the economic fallout from COVID.
Moving forward into 2021
Throughout this crisis, we have said that we not only have to survive COVID as an organization, we must also innovate, evolve, and emerge even stronger. With your help, we will be ready to advance some of our most important work ever in the coming year:
- Priority 1: Defeat.
There are promising classes of potential therapies for a wide range of brain tumors that trusted scientists believe can stop tumors from growing, and that are working in other cancers. NBTS is poised to rapidly evaluate these drugs and send the best forward into clinical trials. We have groups of world-renowned researchers ready to act together, share data, and move fast. These projects could help patients as early as next year.
- Priority 2: Connect.
We must continue to unite and deliver hope to the brain tumor community. Together with you, the NBTS community, we will continue to honor loved ones, help connect patients and families to each other and to experts, and grieve for family members who have succumbed to brain tumors. Across our events and platforms — whether they be live or virtual — we will foster hope, provide information, and deliver real and tangible ways to improve life with a brain tumor. We will ensure no one has to face a brain tumor diagnosis alone.
- Priority 3: Change.
COVID has changed the way medical care is being delivered, and NBTS is convening and leading an agenda to build upon lessons learned and make brain tumor health care better than before — including advocacy for affordable, accessible brain tumor care.
Together, we can rise up, innovate, stand strong, and deliver for the brain tumor community. Be a Catalyst — a change agent, a leader, an igniter of support and hope — today.
MAKE A GIFT