Virtual GBM Awareness Day


Every day, a doctor walks into an exam room and tells a patient that they have been diagnosed with glioblastoma (GBM). A patient learns that GBM is the most common, complex, treatment-resistant, and deadliest type of brain tumor. National Brain Tumor Society and the annual #GBMDay works to change that conversation. We seek to honor and remember, as well as to take action to help others currently facing glioblastoma, and all who may be impacted in the future. Although #GBMDay has passed this year, we hope you will join us throughout the year to raise much needed public awareness and a sense of urgency about all Americans' stake in finding a cure.

GBM Awareness Day Activities

Working together with our Champions on Capitol Hill and the larger brain tumor community, Glioblastoma (GBM) Awareness Day provided our community with a day to pause and honor, learn, and act for everyone impacted by a GBM. As part of our broadcast, we shared the stories and experiences of patients, family members, medical providers, and researchers throughout the day to raise awareness of the challenges presented by GBM and why we need more research and more effective treatments. In our live Virtual Town Hall, we heard about the latest innovations in GBM research, what we need to create progress, and what we all can do to help create cures for patients and families. In addition, there was a discussion on the current status of GBM research and where we are headed, including how the National Brain Tumor Society is working to defeat GBM.

HONOR, LEARN, ACT – Session 1

This broadcast focuses on those affected by GBM across the community: patients, care partners, family, medical providers, and researchers. Throughout the program, you will hear from leading researchers about the latest innovations in GBM treatment, patient and care partner experiences, and clinicians who treat patients every day. Learn about the GBM Awareness Day Resolution and what action steps you can take to help create change for GBM patients and families.


Skip to segment:

  • KIRK TANNER, PhD
    Chief Scientific Officer National Brain Tumor Society
  • DUANE MITCHELL, PhD
    Director, University of Florida Brain Tumor Immunotherapy Program, Co-Director, Preston A. Wells Jr. Center for Brain Tumor Therapy
  • ROBERT CAVALIERE, MD
    Neuro-Oncologist, Baptist MD Anderson Cancer Center
  • PATRICK REGIS, APRN
    Baptist MD Anderson Cancer Center
  • DAVID LOUIS, MD
    Pathologist-in-Chief, Massachusetts General Hospital, Benjamin Castleman Professor of Pathology, Harvard Medical School
  • RANJIT BINDRA, MD, PhD
    Co-Director, Yale Brain Tumor Center at Smilow Cancer Hospital Professor of Therapeutic Radiology
  • DAVID CACHIA, MD
    Neuro-Oncologist Associate Professor, Medical University of South Carolina
  • SCOTT LINDHORST, MD
    Neuro-Oncologist Associate Professor, Medical University of South Carolina
  • EDJAH NDOUM, MD
    Assistant Clinical Investigator National Institute Of Health, National Brain Tumor Society Board Member
  • JACLYN GARCIA RN, CNRN
    Nurse Navigator, Ivy Brain Tumor Center Neurosurgical Oncology
  • VERONICA DEROSA, RN, BA, CBC, RMT
    Oncology Nurse Case Coordinator Neuro-Oncology Team, Hyundai Cancer Institute, Children’s Hospital of Orange County

LEARN – Defeating GBM: A Virtual Town Hall

Moderated by New York Times Pulitzer Prize-winning investigative reporter Eric Lipton, the virtual town hall examined the state of GBM research – where we are, where we need to be, and what we need to get to cures. Town Hall guests include Adam Hayden, GBM patient and advocate; Dr. Ned Sharpless, Director of the National Cancer Institute (NCI); Dr. Richard Pazdur, Director of the FDA’s Oncology Center of Excellence (OCE); Dr. Susan Chang, Director of the Glioblastoma Precision Medicine Program, University of California, San Francisco; Dr. Patrick Wen, Director of the Center for Neuro-Oncology at Dana-Farber Cancer Institute; and David Arons, CEO of the National Brain Tumor Society.

HONOR, LEARN, ACT – Session 2

Our program continues with additional stories and experiences that convey the current status of care for GBM, and what we can hope for in the future. There are many perspectives to share, and our broadcast features more patient and care partner experiences, research updates, and clinician viewpoints. We will outline what more you can do to raise awareness and we hope you will be inspired to take action.


Skip to segment:

A special thanks to our partners:

Untitled
Untitled
Untitled
  • Karyopharm Therapeutics
  • Bracewell
  • Yale
  • Immunomic Therapeutics
  • Kazia Therapeutics
  • MD Anderson Cancer Center
  • VBI Vaccines
  • Cleveland Clinic
  • Society for NeuroOncology
  • Moderna, Inc.
  • Foundation Medicine
  • Mayo Clinic
  • The Colony Group
  • INOVIO Pharmaceuticals
  • GT Medical Technologies

Ways to Support

JOIN AN EVENT

Register for a regional event today, and experience the power of communities coming together to conquer and cure brain tumors once and for all.

DIY FUNDRAISING

Put the fun in fundraising from the comfort of your own home.

BECOME A SUSTAINING DONOR

Join a loyal group of donors who give monthly in support of our mission.