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Stay updated with news and stories of strength and hope. Learn how biomarker testing is unlocking personalized treatment options and how clinical trials are offering new paths forward.
Notes of Courage: Kai’s Childhood Cancer Story Eleven-year-old Kai C. sits down at his piano and masterfully plays his own composed song. The elementary student with an ear for music amazes his mother, Kari, as he improvises and creates pieces. With how effortlessly he moves over the keys, it might be hard to believe that Kai has experienced two recurrences, seven surgeries, […] August 26, 2024
Liz and Julio Piña Share Their Experience with Clinical Trials The National Comprehensive Cancer Network (NCCN) believes the best management of any patient with cancer is a clinical trial, but the idea of enrolling in a clinical trial may seem daunting. In this video, hear why Julio Piña, a patient with anaplastic ependymoma, and his wife Liz enrolled in a trial and what the process […] July 24, 2024
Demystifying Clinical Trials: A Mythbusting Guide for Patients with Brain Tumors and Care Partners In 1774, a British Royal Navy surgeon named James Lind began what is now referred to as the first randomized clinical trial when he divided 12 scurvy-stricken sailors into six groups and administered various treatments. Through meticulous observation and analysis, Lind discovered that the sailors who received citrus fruits experienced significant improvements in their symptoms, […] May 20, 2024
How Biomarker Testing Altered a Patient’s Course of Treatment and Family Decisions Stephen B. served in the U.S. Coast Guard for 20 years and was nearing retirement when he began to experience severe headaches. As part of his retirement preparations, Stephen underwent a standard medical evaluation for all retiring service members to ensure any medical issues go toward their disability once they retire. Because of his headaches, […] April 29, 2024
New Brain Tumor Clinical Trials: January – March 2024 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients. This report provides a summary of the studies that have recently opened or started recruiting (January 1, 2024 – April 9, 2024) for patients with a primary brain tumor*. Follow […] April 12, 2024
Have you undergone biomarker testing for your brain tumor or enrolled in a clinical trial? NBTS wants to hear from you!