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Stay updated with news and stories of strength and hope. Learn how biomarker testing is unlocking personalized treatment options and how clinical trials are offering new paths forward.
Biomarker Testing Gave Julia Answers and the Confidence to Grow Her Family At 26, Julia was a new mom and five months postpartum when her world stopped: she had a brain tumor. After surgery, her health care team believed it was aggressive cancer. But thanks to biomarker testing, Julia’s path — and her prognosis — changed entirely. The Initial Diagnosis In 2019, Julia started experiencing strange, unsettling […] May 9, 2025
Laurence Talks About His Family’s Clinical Trial Experience Laurence’s wife, Julia, faced a brain tumor recurrence in 2021, and they searched for a clinical trial that would be their next best option. In this video, he shares their story and why clinical trials matter, not only to get an opportunity to participate in cutting-edge treatment but also to improve the science of patients […] April 15, 2025
Let’s Talk About Oligodendroglioma While oligodendroglioma is a relatively rare brain tumor, accounting for 1.2% of all primary brain tumors, an estimated 14,950 Americans are living with this tumor and navigating the unique challenges of this disease. Let’s talk about what makes oligodendrogliomas different from other brain tumors and the difficulties people living with this tumor type and their […] March 28, 2025
How Biomarker Testing Changed Everything for a Patient With Brainstem Glioma When Ben S-L. misjudged a corner and walked straight into a wall at work, he realized something wasn’t right. This incident, combined with his increasing headaches and a numb tongue, led Ben to see a neurologist and demand an MRI. Two weeks before turning 32, doctors diagnosed Ben with an inoperable high-grade brainstem glioma. Ben […] March 4, 2025
MyTumorID: ID Your Tumor. ID Your Options. A brain tumor diagnosis can feel overwhelming, but knowledge is key to making informed decisions about care. Biomarker testing helps uncover critical details about a tumor’s genetic makeup, which can open doors to targeted treatments and clinical trials. In this video, brain tumor community members and experts explain why understanding your tumor through biomarker testing […] February 18, 2025
Have you undergone biomarker testing for your brain tumor or enrolled in a clinical trial? NBTS wants to hear from you!
This fall, join us for two free MyTumorID webinars designed to help patients and caregivers learn about biomarker testing (Sept. 26) and clinical trials (Oct. 24). Each session offers expert knowledge, firsthand insights, and resources to help you ask questions and make informed decisions about your treatment.
With MyTumorID, I decide.