News & Stories

Navigating Another Ependymoma Recurrence Long-term survival means different things to different people. For folks in active treatment, long term might be six months or less. But for folks who are several years beyond treatment and learning to navigate life with a new perspective, long term is likely more of a concept that encompasses at least the foreseeable future. Facing […] July 14, 2026

You Have a Brain Tumor. Now What? A Guide to Biomarker Testing, Clinical Trials, and Informed Decisions with MyTumorID® Receiving a brain tumor diagnosis can feel overwhelming. Whether you are a patient or care partner, one of the first questions is: What do we do next? The good news: advances in biomarker testing — including molecular profiling — and clinical trials for […] May 27, 2026

Why I Chose a Glioblastoma Clinical Trial I was serving oatmeal at a retirement home — a job I’d taken just for fun after retiring from 28 years as a recreation therapist at the VA — when I dropped the oatmeal, looked at my boss, and said, “Something’s not right.” I am 62 years old, a former triathlete, and a lifelong Kentuckian […] May 20, 2026

Q&A About Informed Decision-Making with Caroline Crooms, MD, MPH When you’re facing a brain tumor diagnosis, it’s easy to feel like things are happening to you, but informed decision-making helps put you back in the driver’s seat. To help patients and caregivers navigate the complex choices that come with a diagnosis, Jenna Tozzi, RN, Senior Director of Community at the National Brain Tumor Society, […] March 17, 2026

Biomarker Testing Provides Clarity About Amanda’s Meningioma Diagnosis Less than a year after being diagnosed with meningioma, Amanda D. found herself walking along the Asbury Park Boardwalk with her husband, three daughters, and a close friend. As they took part in the National Brain Tumor Society’s New Jersey Brain Tumor Walk, they paused to watch dolphins playing in the ocean. This unexpected moment […] February 17, 2026