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Stay updated with news and stories of strength and hope. Learn how biomarker testing is unlocking personalized treatment options and how clinical trials are offering new paths forward.
A Look Inside Brain Tumor Clinical Trials The medicine in your cabinet had a long journey. When you take a prescription medication, whether it is a chemotherapy like temozolomide (Temodar), an anti-seizure medication like levetiracetam (Keppra), or an anti-nausea drug like ondansetron (Zofran), it’s easy to forget that it didn’t just appear at the pharmacy. It took years of careful planning, teamwork, […] October 9, 2026
[White Paper] Essential Information Isn’t Reaching Patients with Brain Tumors Communication Gaps in Biomarker Testing and Clinical Trials Executive Summary Results from a survey of brain tumor patients and caregivers found that a lack of awareness and subsequent understanding of biomarker testing and clinical trials is linked to critical omissions during patient interactions with doctors and care teams. This deficiency in patient-provider dialogue and patient […] September 23, 2026
How Biomarker Testing Unlocked Answers for a Rare Pediatric Brain Tumor At 15 years old, Marin N. is navigating the typical experiences of a high school sophomore, hanging out with friends, playing volleyball, looking forward to the school year ahead, and exploring possible career opportunities. But in the midst of that everyday rhythm of teenage life, Marin and her family are also undergoing regular scans to […] August 27, 2026
Navigating Another Ependymoma Recurrence Long-term survival means different things to different people. For folks in active treatment, long term might be six months or less. But for folks who are several years beyond treatment and learning to navigate life with a new perspective, long term is likely more of a concept that encompasses at least the foreseeable future. Facing […] July 14, 2026
You Have a Brain Tumor. Now What? A Guide to Biomarker Testing, Clinical Trials, and Informed Decisions with MyTumorID® Receiving a brain tumor diagnosis can feel overwhelming. Whether you are a patient or care partner, one of the first questions is: What do we do next? The good news: advances in biomarker testing — including molecular profiling — and clinical trials for […] May 27, 2026
Have you undergone biomarker testing for your brain tumor or enrolled in a clinical trial? NBTS wants to hear from you!