Stay updated with news and stories of strength and hope. Learn how biomarker testing is unlocking personalized treatment options and how clinical trials are offering new paths forward.
Let’s Talk About Oligodendroglioma While oligodendroglioma is a relatively rare brain tumor, accounting for 1.2% of all primary brain tumors, an estimated 14,950 Americans are living with this tumor and navigating the unique challenges of this disease. Let’s talk about what makes oligodendrogliomas different from other brain tumors and the difficulties people living with this tumor type and their […] March 28, 2025
How Biomarker Testing Changed Everything for a Patient With Brainstem Glioma When Ben S-L. misjudged a corner and walked straight into a wall at work, he realized something wasn’t right. This incident, combined with his increasing headaches and a numb tongue, led Ben to see a neurologist and demand an MRI. Two weeks before turning 32, doctors diagnosed Ben with an inoperable high-grade brainstem glioma. Ben […] March 4, 2025
MyTumorID: ID Your Tumor. ID Your Options. A brain tumor diagnosis can feel overwhelming, but knowledge is key to making informed decisions about care. Biomarker testing helps uncover critical details about a tumor’s genetic makeup, which can open doors to targeted treatments and clinical trials. In this video, brain tumor community members and experts explain why understanding your tumor through biomarker testing […] February 18, 2025
Unlocking Better Outcomes: Melissa’s Advocacy for Biomarker Testing and Brain Cancer Research Last month, Melissa F. and her partner Jess E. arrived bright and early to help set up for the Race for Hope Greater Philadelphia, an event that has become deeply personal to them both. For Melissa, it’s a way to give back to the community that has supported them since Jess’s brain tumor recurrence in […] November 8, 2024
New Brain Tumor Clinical Trials: April – October 2024 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients. This report provides a summary of the studies that have recently opened or started recruiting since our last report for patients with a primary brain tumor. Follow the hyperlink for […] November 7, 2024
Have you undergone biomarker testing for your brain tumor or enrolled in a clinical trial? NBTS wants to hear from you!
This fall, join us for two free MyTumorID webinars designed to help patients and caregivers learn about biomarker testing (Sept. 26) and clinical trials (Oct. 24). Each session offers expert knowledge, firsthand insights, and resources to help you ask questions and make informed decisions about your treatment.
With MyTumorID, I decide.