Hello,
I am a survivor from an inoperable brain tumor (Thalmic) Non-Hodgkin Lymphoma.
I was diagnosed in August, 2019, underwent a brain biopsy and then chemotherapy in September. This required hospitalization for 3-4 days at a time, for the next four months. I was then placed on a pill form of chemotherapy for the next seven months.
Eventually, this stopped working and I was given 4 – 6 months to live.
I was accepted in a clinical trial @ NIH, thankfully, this was working until May, 2021.
Eventually, I was referred to Massachusetts General Hospital for a clinical trial, CART. This was successful and in January, 2022, the oncologist, Dr Frigault, could find no cancer on the MRI.
I am so appreciative and thankful to all the Healthcare, especially in Massachusetts who gave me a second chance at Life!!
I Support Clinical Research. I pray that the funding will continue to support research.
This was a complete surprise, I was otherwise active and healthy or at least, I thought I was.
I went one day from walking into an emergency room to being transported to another hospital and placed into ICU.
The medical care was endless and exhausting at times.
I was not able to do many of the activities that I was able to do before the cancer diagnosis, fatigue with many of the chemotherapy.
My family and friends were very supportive. My husband took on the job as caregiver and has always been there to support me.
The more information and resources that are available, the more this can help patients and families with cancer.
I found out that not all Cancer treatment information is available when outside of the “normal predictable” treatment care.
I hope that there is more patient awareness and help to find different treatment options.
Funding and Outreach for Clinical Trials and Research is so important!
I believe that NBTS is supporting this cause!
Please let others know that it is possible to survive brain cancer, don’t give up!!
