News

Pediatric Ependymoma Patient’s Attitude Inspires Community Two-year-old Kevin M. lies in his hospital bed watching his beloved Puppy Dog Pals show, oblivious to the monitors beeping around him as a pediatric patient with ependymoma. His parents, Danielle and Duane, are nearby, trying to keep the toddler entertained between the pokes and prods that come with being in the hospital. Kevin’s nurse […] September 28, 2023

Government Shutdown: What Patients with Brain Tumors & Care Partners Need to Know The potential for a government shutdown is currently leading national news. If Congress can’t agree on a new budget to fund all of the federal government’s departments, agencies, and programs for Fiscal Year 2024 by Friday, September 29 (or pass what’s known as a “Continuing Resolution” or “CR” to give themselves more time), many of […] September 26, 2023

Mother Advocates for Improved Clinical Trial Access After Daughter’s Brain Tumor Diagnosis Whether hiking through trails perched atop twenty-foot cliffs or touching live sharks and stingrays, middle schooler Ava Q.E. was fearless — always volunteering to go first, thanks to her adventurous personality. It was a shock when Ava started repeatedly losing her vision for 5-10 seconds each time she stood up.  Her eye doctor ordered an […] September 19, 2023

From Classroom to Hospital Room: Elsa Navigates School After Diagnosis Elsa’s life took an unexpected turn on Feb. 15, 2019, when she began experiencing flu-like symptoms, severe headaches, and high fevers. As a six-year-old, her family assumed it was a typical childhood illness. However, when her condition worsened, and she experienced paralysis on her left side and vision loss, they knew something was seriously wrong.  […] September 18, 2023

“Deadlift Diva” Honors Daughter’s Memory by Hosting a Community Fundraiser When Jesse C. and his older sister LaTosha C. decided to host a charity powerlifting meet in memory of her daughter, who passed away nearly 20 years prior from a brain tumor, Jesse knew he wanted to hit his 700-lb. deadlift goal at that meet. On the day of the meet, the energy in the […] September 8, 2023