More than 18,000 volunteer advocates across all 50 states affect change at the local, state, and national levels annually. Stay atop the latest action alerts below or by becoming an advocate. With thousands beside us, our collective voices and actions are a powerful force for progress.
The brain tumor community needs breakthroughs — now. We need Congress to provide sustained and adequate funding to make that possible. Together, let’s urge Congress to pass a budget for the coming Fiscal Year (FY24) that prioritizes brain tumor research and treatment development programs.
The Palliative Care and Hospice Education and Training Act (PCHETA, S. 2243) was introduced in the Senate for the 118th Congress on July 11, 2023. NBTS invites you to sign our action alert to build co-sponsors for PCHETA and thank senators who are already co-sponsors. Taking action can help position PCHETA with strong bipartisan support before the end of the year.
Social Security Disability Insurance (SSDI) is an important safety net for people with disabilities. For brain tumor patients, who may have to leave their jobs and lose income and job-based health insurance as a result, these earned benefits can provide a lifeline during an uncertain and frightening time. Congress must pass the Stop the Wait Act (H.R. 6583 / S. 3575) to ensure brain tumor patients and other patients with urgent financial and medical needs get the SSDI and Medicare benefits they have earned.
A new year provides a new opportunity to find champions on Capitol Hill who will join National Brain Tumor Society (NBTS) and the brain tumor community in the fight to conquer and cure brain tumors – once and for all. Our 2023 Public Policy Agenda outlines NBTS’s legislative and regulatory priorities for the year. Read the full 2023 NBTS Public Policy Agenda and then share your story with your member of Congress to encourage them to support our priorities for this year.
Your voice matters. Join a community of advocates across the U.S. to educate your elected officials and influence public policies that affect patients with a brain tumor, care partners, and their families. By becoming an advocate, you can stay atop the latest action alerts and make a difference on behalf of the brain tumor community.