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Childhood Cancer Awareness Month: Creating change to last a lifetime

Make A Gift Create Change

Bring the realities of this devastating diagnosis for children and families to the forefront this September.

What is Childhood Cancer Awareness Month?

Childhood Cancer Awareness Month (CCAM) is a time to recognize, advocate for, and honor children who have been affected by cancer and the families that care for them. This September, the National Brain Tumor Society will highlight the devastating realities of a brain tumor diagnosis for children and families by sharing important progress being made in the field, raising resources to support ongoing and future research efforts, and providing opportunities for our community to help create change to last a lifetime.

As brain tumors are the leading cause of cancer-related death and the most commonly diagnosed solid cancer in children and adolescents age 19 and younger, the brain tumor community has an enormous stake and voice in Childhood Cancer Awareness Month.

We’ll share important progress being made in research to find better treatments and improve survival and quality of life, and to improve health care and support for families facing a pediatric brain tumor diagnosis. 

Learn more about pediatric brain tumors below, including how the National Brain Tumor Society seeks to change that reality and is working to find better treatments and a cure.

Pediatric Brain Tumor Facts & Figures

5,900 Pediatric Patients

will receive a brain tumor diagnosis in 2022

75.6 Percent

is the five-year survival rate for primary pediatric brain tumors

#1 Cause

of cancer-related death among children and adolescents ages 0-19 years

13,657 Children

are estimated to be living with a primary brain tumor in the U.S.

  • Brain tumors are the leading cause of cancer-related death among children and adolescents ages 0-19 years.
  • Brain tumors are the most common solid cancer in children and adolescents ages 0-19 years in the U.S.
  • An estimated 5,900 children and adolescents will be newly diagnosed with a brain tumor in the U.S. in 2022.
  • ​​It is estimated that 13,657 children are living with a primary malignant brain tumor in the U.S.
  • For all primary pediatric brain tumors, the five-year relative survival rate is 75.6%.
  • There has never been a treatment developed and approved specifically for pediatric brain tumors.
  • For many pediatric brain tumor types, a standard of care is not well-defined.
  • Because of their location and the aggressive treatment required, brain tumors can have lasting and life-altering physical, cognitive, and psychological impacts on a patient’s life.

Focusing on the Future

National Brain Tumor Society is committed to accelerating new treatments for pediatric brain tumor patients that will improve children’s survival and quality of life. Learn about how NBTS and our volunteers, donors, and partners are making change for the pediatric brain tumor community that will last a lifetime.

Learn More

Create Change

Together, we can create change that will last a lifetime. Take action for pediatric patients with a brain tumor this month by signing up to become an advocate, joining or starting an event, or setting up a fundraiser in honor of a loved one.

Raise Awareness

Pediatric patients with a brain tumor need more — more research, more treatments, and more time. Share your story to show others that they are not alone and to create change for our most vulnerable patients.

Make a Gift

Your support is critical to ensuring the urgent, unmet needs of the pediatric brain tumor community continue to be heard and addressed. When you make a one-time or sustaining gift to NBTS, you have an immediate impact on the important work underway to conquer and cure brain tumors — once and for all.

Stay Informed & Connected