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The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.
This support group is a welcoming space where patients and loved ones can have honest, supportive discussions about the feelings and emotions that accompany any aspect of the brain tumor experience.
Co-founders and volunteer facilitators Adam Hayden and Lisa O’Leary host regular, open, and honest online support groups for the brain tumor community to connect with each other on topics that matter to them. Adam and Lisa recently discussed ways to connect with the brain tumor community and what to expect in a Brain Tumor Support Conversations session in an NBTS blog post.
Adam was diagnosed with glioblastoma in 2016. Adam draws from his formal education in Medical Humanities and Religious Studies (undergraduate) and Philosophy (graduate) to offer a unique perspective on living with brain cancer. Also a husband and dad to young children, Adam knows first-hand the impact a brain cancer diagnosis has on quality of life and family dynamics.
The brain tumor experience is isolating. When I was diagnosed at 34 years old, with three young children at home, I had to look online to find peers. I wish our virtual gathering was around then! But I’m so happy to co-lead this support opportunity now. I can’t wait to welcome you!Adam Hayden
Lisa is a former care partner to her late husband Patrick who passed from glioblastoma. Lisa’s formal and professional experience as a lawyer well suits her as a knowledgeable and engaged advocate, whose experience navigating the healthcare system as an advocate on behalf of her partner, and her personal journey of recovery after his loss, lends tremendous experience to others.
My husband Patrick was diagnosed with GBM in 2014. He died only 11 months after his first seizure. Widowed at 31, I felt lost and alone. It wasn’t until getting involved with NBTS that I started to feel useful again. I’m grateful my experience can offer support to this community.Lisa O'Leary