Share Your Aphasia Experience With NBTS

Approximately 30-50% of patients with brain tumors develop some type of aphasia, which is when a person has difficulty understanding or expressing oral language due to damage to a part of their brain responsible for language.

National Brain Tumor Society invites you to share your experiences, practical tips, and the honest realities about what life with aphasia is like to help inform our work on an upcoming blog post about aphasia.

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Are you comfortable sharing your experience with NBTS for possible inclusion in future content (e.g., Share Your Story page, social media, NBTS’s blog, etc.)? Your quotes would be attributed to your first name and last initial.(Required)

Could you describe what a typical moment of aphasia feels like for you? For example, is it forgetting specific words, struggling to follow fast conversations, or having difficulty writing/texting?

Have you noticed that your ability to communicate changes throughout the day, depending on your energy levels?

How has aphasia impacted your sense of identity or your confidence in social settings? For example, do you find yourself avoiding certain situations (like answering the phone or ordering at a restaurant) because of your aphasia?

In what ways have your friends or family successfully supported your communication? On the other hand, what is one thing people do that actually makes it harder?

What is one thing about living with aphasia that people who don't have it often misunderstand?

If someone was just diagnosed with a brain tumor and is starting to experience aphasia, what is the one thing you’d want them to know?

Is there anything else you would like to share?

Your Connection to Brain Tumors

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Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

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