News

Notes of Courage: Kai’s Childhood Cancer Story Eleven-year-old Kai C. sits down at his piano and masterfully plays his own composed song. The elementary student with an ear for music amazes his mother, Kari, as he improvises and creates pieces. With how effortlessly he moves over the keys, it might be hard to believe that Kai has experienced two recurrences, seven surgeries, […] August 26, 2024

New Approval of Treatment for Young Children with Certain Brain Cancers On March 16, 2023, the U.S. Food and Drug Administration approved a new treatment combination that will now be available as an option for pediatric patients 1 year of age and older with low-grade glioma (LGG, grade 1 or 2) that have a mutation called BRAF V600E. This marks the first FDA approval of a […] March 21, 2023

How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet more than 3,420 families will receive the news in 2024 alone.  This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did […] September 16, 2022

Q&A: A New Treatment Approved for Certain Brain Tumors In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The approved combination of two oral drugs, called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist), is for the treatment of advanced tumors […] August 9, 2022

New Brain Tumor Clinical Trials: January – June 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for primary brain tumor patients*. To learn more about each trial, and to contact the […] July 5, 2022