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Almost A Year Together

Published on December 1, 2025 in Share Your Story

Guest Author: Susan B. in Indiana

I was the caregiver for my husband, Daniel. He had just turned 65, and on July 8, 2024, he was diagnosed with glioblastoma multiforme stage 4. The tumor was in the language portion of his brain. The surgeon was able to remove 85% of the tumor. Daniel was a professor of communication for 35 years. He lost most of his memory and the ability to read and write. He was not able to do anything with numbers. He lost so much of what made him who he was. He was aware of his losses. 

After five months of treatment, he wanted to enter hospice. Best decision we made. He was brave and courageous. He was a warrior. It was my privilege to care for Daniel until his last breath. I was with him. The day before he died we were in the kitchen having a snack and singing and dancing at 4 a.m. What a great memory.

We were married 36 years, 5 months, and 26 days. We shared the blessings of God together. He lived almost a year, eight days shy of a year. A year that he walked humbly with his God. Hardest thing we ever faced. Daniel’s earthly journey ends and my earthly journey is new and continues into a new rhythm of life. A great year of memories made. I miss him everyday. 

To close, I want to say that on the 26th day of each month, I set that day as a Remembrance Day and celebrate his life. He would like that.

TAGGED WITH: glioblastoma


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

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