Skip to content
BACK to Stories

My Journey with 3 Hemangiomas

Published on June 20, 2025 in Share Your Story

Guest Author: Joelin L. in North Carolina

I was diagnosed with three hemangiomas in October 2020.

In April 2022, I had to have a craniotomy to remove one of the tumors that was wrapped around my left optic nerve.

As of today, I still have two hemangiomas that the neurosurgeon has been watching.

The first thing I had to do was learn how to cope with having a headache, dizziness, and fatigue.

I wish more people knew that everyone responds differently to their diagnosis. Also, everyone’s journey is different, as well as our outcome.

TAGGED WITH: meningioma


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

See All News

Stay Informed & Connected