There Are Options Out There

In 2022, I was diagnosed with a 8 cm pituitary tumor, along with a rare disease called acromegaly. I received transphanoidal pituitary surgery, where my surgeon was able to remove 75% of my tumor, but it unfortunately it was spread into my carotid artery and was unable to be fully removed.

Now, in 2024, the remains of my tumor and acromegaly are still being controlled by medication and I have somehow managed to avoid radiation or additional surgery at this point.

This is something they believe, due to size, has been growing since I was 18ish- I am now 32.

It really was a positive and negative effect of both myself and loved ones.

Positive because we all got answers to so many questions we had piled up over the years- Why is she always sick? Why is she always tired? What happened to Abby?

Negative because of course this is terrifying for anyone involved- and the unknown is so scary.

I have yet to really find my community. I do share my story at any opportunity though.

This is HUGE! I think this is a massive win for this community. It is such a topic that too many people are unaware of- the brain plays too big of a role in our body for us to not know what is happening with it, or what COULD happen.

It is not for the weak, but there are options out there for you and help out there- answers.

TAGGED WITH: pituitary tumor

Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.