Additional Resources

About Research Participation
About Research Participation is an educational website through the U.S. Department of Health and Human Services to provide information about research and research participation.

Association of Community Cancer Centers
The Association of Community Cancer Centers (ACCC) brings together oncology professionals from across the nation to promote and deliver quality cancer care.

Bag It Cancer
Bag It Cancer provides printouts and binders for patients with cancer to organize healthcare information and a robust resource center.

Cancer and Careers
Cancer and Careers empowers and educates people with cancer to thrive in the workplace by providing expert advice, interactive tools, and educational events.

Cancer Support Community
Cancer Support Community provides education, resources for talking to kids about cancer, radio shows, virtual programs, a Cancer Experience Registry, and an online MyLifeLine community to support patients, parents, and care partners impacted by cancer.

Cancer.Net
Cancer.Net provides patient-friendly resources from the American Society of Clinical Oncology (ASCO) about different cancer types, navigation, and survivorship concerns.

Carebox Connect
Carebox Connect provides a free clinical trial finder and matching service for individual patients and their care teams.

CureMatch
CureMatch provides a service to patients with cancer who have had biomarker testing to identify treatment options for their unique tumor.

Global Genes
Global Genes provides education, resources, and community for people living with rare diseases and their advocates.

Job Accommodation Network (JAN)
The Job Accommodation Network (JAN) provides free, expert, and confidential guidance on job accommodations and disability employment issues.

My Biomarker Navigator
My Biomarker Navigator provides one-on-one navigation to empower patients to request, receive, and understand comprehensive biomarker testing of their tumors.

My Cancer Navigator
My Cancer Navigator is a program of the Anticancer Fund that provides free and personalized information about cancer and treatment options for patients and their loved ones.

National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship (NCCS) provides personalized survivorship checklists, resources, education, and advocacy to improve the quality of care and quality of life for patients after diagnosis.

National Comprehensive Cancer Network
The National Comprehensive Cancer Network (NCCN) provides clinical practice guidelines and resources for patients, clinicians, and other health care professionals around the world.

National Organization for Rare Disorders
National Organization for Rare Disorders (NORD) provides education, patient services, advocacy, and research efforts to individuals with rare diseases and the organizations that serve them.

NCI-Designated Cancer Centers
NCI-Designated Cancer Centers are recognized by the National Cancer Institute for upholding rigorous standards in state-of-the-art research focused on developing new and better approaches to preventing, diagnosing, and treating cancer. They deliver cutting-edge cancer treatment to patients in communities across the United States.

NTRKers
NTRKers provides community and unites people affected by NTRK gene fusion cancer worldwide.

One Cancer Place
One Cancer Place provides education and community to patients with cancer around biomarker testing and treatment options.

Patients Rising
Patients Rising provides education and resources such as the Know Your State tool and a guide to self-advocacy for people living with chronic and life-threatening illnesses and their caregivers.

Reagan-Udall Foundation for the Food and Drug Administration
The Reagan-Udall Foundation for the Food and Drug Administration provides guidance about investigational treatment options for patients and caregivers to better navigate and discuss clinical trials and expanded access (EA) options with their care teams.

Roon
Roon offers an online resource of educational videos for people impacted by glioblastoma from a team of experts including neurosurgeons, neuro-oncologists, psycho-oncologists, social workers, patients, and caregivers.

American Brain Tumor Association
American Brain Tumor Association provides a CareLine to assist with a variety of resources, one-on-one patient and caregiver mentorship, and a support community called “Connections.”

Brain Tumor Network
Brain Tumor Network provides free personalized navigation to guide patients and their care partners through the complexities of the healthcare system with nurses, social workers, virtual advocates, and more.

Brains for the Cure
Brains for the Cure provides online resources for patients and caregivers navigating a brain tumor diagnosis featuring stories, support groups, educational videos, and personalized support through Join Your Path to Hope.

Children’s Brain Tumor Foundation
The Children’s Brain Tumor Foundation provides online programs, support groups, financial assistance, age-appropriate care kits, and other resources for kids, teens, and families impacted by brain and spinal cord tumors.

EndBrainCancer Initiative
The EndBrainCancer Initiative, formerly known as the Chris Elliott Fund, provides guidance and education for patients with brain tumors and their families.

Greg’s Mission
Greg’s Mission provides free one-on-one support from a long-term survivor of glioblastoma to people with brain tumors.

International Brain Tumour Alliance
The International Brain Tumour Alliance (IBTA) provides experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of people with brain tumours and their families.

Musella Foundation
The Musella Foundation For Brain Tumor Research & Information provides financial support, education, advocacy for brain tumor research.

OurBrainBank
OurBrainBank provides resources for patients with glioblastoma including the GBM Bill of Rights and education pieces for patients and caregivers.

Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation (PBTF) provides resources, peer-to-peer mentoring, a virtual support group, and more for families impacted by childhood brain tumors.

StacheStrong
StacheStrong is devoted to raising funds and awareness for brain cancer research and clinical trials.