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READ MOREA brain tumor diagnosis can have a significant impact on the quality of life of both patients and their care partners. Supportive care resources are available to help individuals with brain tumors and their caregivers manage physical symptoms, cope with emotional challenges, and improve their overall quality of life.
Academy of Nutrition and Dietetics
The Academy of Nutrition and Dietetics provides education, research, and advocacy to improve the public’s health through nutrition and dietetics.
American Speech-Language-Hearing Association (ASHA)
The American Speech-Language-Hearing Association (ASHA) provides information and resources for the public to make effective communication, a human right, accessible and achievable for all.
Assistive Technology Act Technical Assistance and Training Center (AT3)
The Assistive Technology Act Technical Assistance and Training Center (AT3) provides resources and support for acquisition of assistive technologies to individuals with disabilities.
CaringInfo
CaringInfo, a program of the National Hospice and Palliative Care Organization, provides free resources to educate and empower patients and caregivers to make informed decisions about serious illness and end-of-life care and services.
Get Palliative Care
Get Palliative Care, a website provided by the Center to Advance Palliative Care (CAPC), provides comprehensive information on palliative care and a provider directory for people living with a serious illness.
Hearing Loss Association of America
The Hearing Loss Association of America provides education, programs, and resources to support people with hearing loss.
Hidden Disabilities Sunflower
The Hidden Disabilities Sunflower provides a simple tool for people to voluntarily share that they have a disability or condition that may not be immediately apparent and that they may need a helping hand, understanding, or more time in shops, at work, on transport, or in public spaces.
Hospice Foundation of America
Hospice Foundation of America provides education to the public and health care professionals about death, dying, and grief.
National Aphasia Association
The National Aphasia Association provides access to research, education, rehabilitation, and therapeutic and advocacy services, to individuals with aphasia and their caregivers.
National Hospice and Palliative Care Organization
National Hospice and Palliative Care Organization provides a care provider directory to find palliative care, hospice, and bereavement professionals in the NHPCO database.
We Honor Veterans
We Honor Veterans, a program of the National Hospice and Palliative Care Organization in collaboration with the Department of Veterans Affairs (VA), provides educational tools and resources on how to accompany and guide veterans through their life stories toward a more peaceful ending.
Worldwide Hospice Palliative Care Alliance
The Worldwide Hospice Palliative Care Alliance brings together the global palliative care community to improve well-being and reduce unnecessary suffering for those in need of palliative care.
American Counseling Association
American Counseling Association provides several directories to find professional counselors by groups served.
American Family Therapy Academy
American Family Therapy Academy provides a directory to find therapists by location.
Give an Hour
Give an Hour provides mental health support and free counseling to veterans, military families, and others who have experienced humanmade trauma.
GoodTherapy
GoodTherapy provides an online directory to therapists, psychologists, counselors, rehab and residential treatment centers, and and mental health resources.
Imerman Angels
Imerman Angels provides free personalized one-on-one support with mentor angels for cancer fighters, survivors, and caregivers.
Twist Out Cancer
Twist Out Cancer provides psychosocial support to cancer survivors and their loved ones through creative arts programming.
Warmlines
Warmlines provide peer support by phone for people to talk to somebody with lived experiences with mental health issues, trauma, and/or extreme states.
Alliance for Fertility Preservation
The Alliance for Fertility Preservation provides information, resources, and access to fertility preservation and family-building services for people with cancer.
Hope for Two… The Pregnant with Cancer Network
Hope for Two… The Pregnant with Cancer Network provides free support for women diagnosed with cancer while pregnant by connecting them with women who have experienced a similar cancer diagnosis.
Livestrong Fertility
Livestrong Fertility provides reproductive information, resources, and financial support to survivors whose cancer and its treatment present risks to their fertility.
Resolve: The National Infertility Association
Resolve: The National Infertility Association provides access to care, support groups, education, advocacy, and awareness of all family building options to people challenged in their family-building journey.
Team Maggie’s Dream
Team Maggie’s Dream provides grants to help with the cost of fertility preservation for people with cancer.
The Oncofertility Consortium
The Oncofertility Consortium provides patient education, navigation, and resources on fertility issues and concerns for people impacted by cancer.
Verna’s Purse
Verna’s Purse provides financial assistance for fertility preservation services to survivors of cancer.
Worth the Wait
Worth the Wait provides financial assistance for adolescent and young adult cancer survivors pursuing parenthood.
Dougy Center
Dougy Center provides resources and support to children, teens, young adults, and families who are grieving.
Empower
Empower provides mentorship, programs, and activities for girls, boys, and non-binary youth who have experienced the loss of a parent.
Evermore
Evermore provides resources for people experiencing loss and grief including a state directory of organizations and bereavement centers for people nationwide.
Experience Camps
Experience Camps provide free camps to grieving children who have experienced the loss of a parent or sibling to build their coping resources, confidence, and resilience.
MISS Foundation
The MISS Foundation provides support services, one-on-one mentorship, retreats, and counseling resources for families experiencing the death of a child.
National Alliance for Children’s Grief
The National Alliance for Children’s Grief (NACG) provides support and education about the needs of children and teens who are grieving.
National Widowers’ Organization
The National Widowers’ Organization provides a virtual toolkit for men coping with the loss of a loved one and a place where men can meet others going through the same transition.
Speaking Grief
Speaking Grief provides education and resources to support grievers and those who support them.
TAPS
TAPS provides peer support, comfort, and connection to grief resources for those grieving the death of a military or veteran loved one.
The Center for Prolonged Grief
The Center for Prolonged Grief through Columbia University’s School of Social Work provides education and resources to the public on complicated and prolonged grief.
The Compassionate Friends
The Compassionate Friends provides personal support, local chapters, and online communities for families experiencing the loss of a child.
Last updated August 13, 2024.
In listing a resource on this page, the National Brain Tumor Society does not endorse or guarantee their services or the quality of their services. If you have additional resources that you would like to recommend, please email our Community team at communityteam@braintumor.org.