Share Your Parenting Experience With NBTS

We frequently hear from community members that navigating relationships can be one of the unexpected challenges they face after a diagnosis. NBTS is working on content that will highlight some of the parenting challenges that come with a diagnosis (both as a patient and a caregiver) and offer tips and tools that parents in this community have found helpful.

Please complete the form below if you’re willing to share your parenting experience for possible inclusion in future NBTS content. Due to the nature of this content, we can provide you with a pseudonym to protect your privacy if indicated below.

Name:(Required)

First Last

Email:(Required)

Where are you from?(Required)

City State

Are you comfortable sharing your parenting experience with NBTS for possible inclusion in future content (e.g., Share Your Story page, social media, NBTS’s blog, etc.)?(Required)

If so, are you comfortable with NBTS attributing your quote to your first name and last initial? If you select no and continue completing this form, a pseudonym will be attributed to your quote(s).(Required)

What are the age(s) of your kid(s) today? What year were you or your co-parent diagnosed?(Required)

How did your brain tumor diagnosis or your co-parent’s diagnosis impact your family life, particularly your role as a parent?

What were the initial challenges you faced when managing the new diagnosis and parenting responsibilities? It might be telling them about the diagnosis, parenting while recovering from surgery or treatment, or any other parenting struggle during that time.

How did you explain the diagnosis to your child(ren)? Were there any books or resources that helped you explain your new circumstances or ongoing treatment?

How have you navigated your child(ren)’s emotional and behavioral responses to your diagnosis?

What adjustments did you have to make to your daily routines to balance treatment and parenting?

How do you handle days when treatment or symptoms interfere with the patient’s or your ability to parent?

What kind of support (e.g., family, friends, community, professional) has been most helpful to you and your family?

Can you share any specific resources or organizations that have been helpful to you as a parent with a brain tumor diagnosis? Did you receive any information that was not helpful?

If you could go back to when you or your co-parent was diagnosed, what do you wish you would’ve known about parenting with a brain tumor?

What have you tried to prioritize with your child(ren) amidst your treatment and beyond?

Would you be willing to share a personal story or anecdote about a particularly challenging or rewarding moment in your parenting journey since your diagnosis?

Is there anything else you would like to share with us on this topic?

Your Connection to Brain Tumors

Please share your connection to brain tumors.(Required)

Other connection to brain tumors:

Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

Other diagnosis (or unknown):

Share Your Parenting Experience With NBTS

Your Connection to Brain Tumors

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Share Your Parenting Experience With NBTS

Your Connection to Brain Tumors

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