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The Collaborative Ependymoma Research Network (CERN) Foundation, a designated program of the National Brain Tumor Society, works to advance ependymoma research toward the development of new and better treatments for this rare brain and spinal cord tumor that impacts both adults and children. CERN is committed to improving the care and outcome of people with ependymoma through community support and research efforts.
The Ependymoma Fund for Research and Education is the flagship initiative that creates a centralized landing place where all ependymoma stakeholders can join together and support research, advocacy, and patient education initiatives for this rare tumor.
Donations to the Ependymoma Fund will be used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The collaborative Ependymoma Fund continues CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Gifts of all sizes help to advance our mission and fuel the breakthroughs we need to find a cure.
Established in 2006, the CERN Foundation is now a designated program of the National Brain Tumor Society dedicated to improving the lives of those affected with ependymoma. Thanks to the efforts of an international network of collaborators, the CERN Foundation has been responsible for the publication of over 50 peer-reviewed papers in leading medical journals. This body of research has greatly advanced our understanding of ependymoma and left a lasting legacy for future investigators to build upon.
Today, the CERN Foundation continues to advance ependymoma research by supporting scientific fellowships, clinical trials, sponsoring professional conferences and symposia, and investigating risk factors for the disease. We strive to bring awareness to the rare disease and improve the outcome and care of patients through education, referral support, and supported research efforts.
The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers.