Talk About Awake Craniotomies With NBTS

Thank you for taking the time to share your experience. Our National Brain Tumor Society team is asking patients who have undergone awake craniotomies to share their experiences with us for possible inclusion in future NBTS content.

By sharing your experience, you help demystify this procedure and offer support to others facing a similar surgery.

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Are you comfortable sharing your awake craniotomy experience with NBTS for possible inclusion in future content (e.g., Share Your Story page, social media, NBTS’s blog, etc.)? Your quotes would be attributed to your first name and last initial.(Required)

Why did your neurosurgeon believe an awake craniotomy was necessary compared to a sedated craniotomy (e.g., the tumor was right next to an area of the brain responsible for speech or motor function)?

How did your medical team explain an awake craniotomy to you?

What were your biggest concerns heading into surgery, and how did your medical team address those concerns?

Did your health care team ask you specific questions or to do specific tasks before your surgery, and then repeat them during surgery? If so, what were they?

What do you remember from the surgery itself? (Any sights, sounds, sensations, conversations, emotions?)

What helped you stay calm or grounded during the awake portion of the procedure?

Did you feel connected to the surgical team during the operation? How did they support you in the moment?

What would you tell someone if they asked, “What’s it <em>really</em> like to be awake during brain surgery?”

Do you have any tips or advice for someone who is about to have an awake craniotomy?

Your Connection to Brain Tumors

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Other connection to brain tumors:

Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

Other diagnosis (or unknown):

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