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Stories

BRAIN TUMOR AWARENESS MONTH

Many Voices. One Mission.

Every brain tumor experience is more than a statistic — it’s a story that deserves to be heard. Whether you’re living with a brain tumor, caregiving, or honoring a loved one’s memory, your voice matters. Share your story today because we’re many voices, united by one mission.
TELL YOUR STORY

Stories

Share Your Story

Submit your story via text or video to inspire and remind others in this community that they aren’t alone in their journey.

Hear From Others

Explore stories of resilience and the lived experiences of patients, caregivers, and families from across our entire brain tumor community.

Share Your Story

Your voice matters, and sharing your story helps us build a more connected community. Whether you prefer to write or record a video, we invite you to share your experience in the way that feels most comfortable to you. This community is made up of many voices — thank you for adding yours.

SHARE YOUR WRITTEN STORY

TELL US YOUR STORY BY VIDEO

Talk to Us About These Topics

Help us highlight the many different facets of the brain tumor experience by contributing your unique insights on the topics below.

Biomarker Testing

Clinical Trials

Quality of Life

Your Tumor Type

Your Favorite Form of Creative Expression

Your Tattoo

Navigating Relationships

Laser Interstitial Thermal Therapy (LITT)

Community Member Stories

Two Sisters, Two Coasts, One Mom
More Time to Raise My Kids
GLIOMA
And Then One Day Everything Changed
MENINGIOMA
My Story
MENINGIOMA
Tim’s Story: Scanxiety After Meningioma Recurrence
See All Stories

Reclaiming Life as a Young Adult and New Father After Astrocytoma Diagnosis
Why a Family Advocates for the BRAIN Act
Biomarker Testing Provides Clarity About Amanda’s Meningioma Diagnosis
See All Stories
VIDEOS FROM THE COMMUNITY

Laurence’s Brain Tumor Advocacy After Loss

Laurence’s wife, Julia, was diagnosed with anaplastic astrocytoma in 2015. Their love story brought Laurence across the Atlantic Ocean to be with Julia, and he managed her care with strength and devotion for eight years until her passing.
VIDEOS FROM THE COMMUNITY

Rhea Shares Her Pediatric Brain Tumor Story

When Rhea was in sixth grade, she was diagnosed with pineoblastoma, a rare and aggressive brain tumor. She faced grueling treatments, lost her hair, battled side effects — and then relapsed. Rhea now advocates on behalf of the brain tumor community.
VIDEOS FROM THE COMMUNITY

Johnathan’s Glioblastoma Story

Johnathan shares his story, starting with his November 2023 diagnosis, and how he’s using his voice to fundraise for the National Brain Tumor Society and create hope for others facing this disease.
VIDEOS FROM THE COMMUNITY

Mike and Rachel Find Support From NBTS Patient Navigator

Overwhelmed by unknowns and endless questions after her husband’s astrocytoma diagnosis, Rachel connected with the National Brain Tumor Society’s Personalized Support and Navigation team. NBTS helped them ask the right questions to find the best care team.
VIDEOS FROM THE COMMUNITY

Biomarker Testing Gave the Peterson Family More Time

When Darlene was diagnosed, doctors first believed it was a low-grade glioma. Initial tests pointed in that direction, but biomarker testing revealed the truth: her tumor was actually glioblastoma. Instead of a “watch and wait” approach, her care team started treatment immediately.
VIDEOS FROM THE COMMUNITY

Brain Tumor Advocates Lori & Theo Share Their Story

When Theo was just one year old, he was diagnosed with medulloblastoma. Five years later, Theo and his mom, Lori, began attending the National Brain Tumor Society’s signature advocacy event, Head to the Hill.

Community Member Stories on Social Media

Below, you will find Instagram posts from members of the brain tumor community using the hashtag #NBTSConnect. This feed is updated daily, so please allow 24 hours for your post to display on this page.

Stay Informed & Connected

2X MATCH: YOUR GRAY MAY GIFT GOES TWICE AS FAR

Double your impact! Right now — and for a limited time only — all gifts (up to $100,000) will be matched, dollar for dollar, thanks to the generosity of Terry and Susan Anderson.

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