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Key Questions

It is critical that patients with a brain tumor, caregivers, and medical providers know which questions and health care issues need to be addressed throughout your treatment.

During Treatment Key Questions

  • Will quality of life and palliative care be part of my plan during treatment?
  • What can I do to feel better?
  • Will I need long-term care services?

  • How will side effects such as fatigue, hair loss, and headache be managed during my treatment?
  • Do I need rehabilitative services? If so, how do I access them, which ones and for how long?
  • What can I do to manage my side effects?
  • How do you recommend I keep track of how I feel, and what do you need to know?
  • What should I be watching for to call for immediate help?

  • How will we address mental health support for myself and my caregiver throughout treatment?
  • Will I have access to social work support?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Can you tell me about any financial support services, from either the hospital, company that produces my treatment, or local charities, that my family and I can use to help with the cost of my treatment and other hardships we may face related to my brain tumor?
  • Will I need to navigate long-term Social Security Disability Insurance (SSDI) and who can help me do that?
  • Do you have any special rates for people paying out-of-pocket?
  • Who can help me understand Medicare and my state’s Medicaid rules for long-term care and my eligibility?
  • Can I drive or will I be able to drive eventually? What do I need to do to be cleared to drive again? Can you recommend any local transportation assistance programs?
  • Should I be planning financially for long-term medical care such as a nursing home or hospice?

  • Are rehabilitative services covered by my insurance? If so, what is covered?
  • What if I don’t meet my rehabilitative goals before my benefits run out?
  • Are private duty care and long-term care covered under my health insurance policy? If not, can I purchase this additional coverage?
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