Remember your support groups
Support groups are a great way to help patients and caregivers not feel so alone throughout their journey with a brain tumor. After you’ve completed your treatment, consider staying actively involved in your support community, not only for your benefit, but to be an inspiration to others going through their own brain tumor journey.
The diagnosis of a brain tumor and all that follows can be a lonely and confusing experience. You don’t have to go through this process alone and speaking with others who know what you’re going through can be a great comfort. Many hospital systems have support groups patients, family members and care partners can attend. Some of these groups may even be brain tumor specific. Ask your doctor, nurse navigator or social worker for a list of support groups in your area.
Many of our patients and care partners say they are unable to commute to attend a support group. Though not moderated by a licensed counselor, there are many brain tumor groups on social media. Additionally, the hashtag #BTSM (brain tumor social media) can be used on twitter to reach out to the brain tumor community.
NBTS offers monthly Brain Tumor Support Conversations which provide honest, supportive discussions with brain tumor patients and care partners in a virtual support group. These online support group conversations are held on the third Sunday of each month at 7 pm ET/4 pm PT. You can sign up to join the conversations here.