Stories

Why Me? Why Not Me? In February 2024, I was a healthy-ish male, 58 years old. I was in my second career. I thought the symptoms I had were because I was getting older. Forgetfulness, dizziness, lack of focus. I have had a bloodshot right eye since 2018. Been to so many eye doctors, specialists, and an eye hospital in […] August 22, 2025

GBM Nightmare My husband was away for two weeks in Sturgis, SD, in August 2022. The first week went well for him — riding his Harley all around SD. During the second week, fellow bike riders were texting me that he was not himself. He was sleeping a lot and taking Tylenol like it was candy.  He […] August 10, 2025

My Dad’s Courageous Battle Back in October 2019, my dad had a seizure while golfing and was later diagnosed with glioblastoma, one of the most aggressive and difficult-to-treat brain cancers. The news was devastating, as glioblastoma carries a grim prognosis and limited treatment options. Since then, he’s undergone brain surgery, radiation, and chemotherapy, and has continued to fight with […] July 16, 2025

There is Nothing Redeeming About Glioblastoma My 88-year-old father was in pretty darn good health when I noticed over the phone that his words were getting jumbled. I thought maybe the first time he was just sleepy, so I waited another week and talked to him again. This time, the words were coming out even more jumbled. I urged my mother […] July 15, 2025

Survived Past 5 Years After Grade 4 GBM I was diagnosed in March 2018 in Australia with grade 4 glioblastoma (GBM) at the age of 48.  After first surgery, I was given 18 months to live.  After that, I went to surgery with Prof Dr Charlie Teo on 23/5/18.  Then, he gave me 5 years. I’m still here to enjoy life. July 3, 2025