Share Your Health Insurance & Medicare Tips with NBTS

We invite you to share your health insurance or Medicare experiences and tips with us to help inform other members of the brain tumor community and the work we do.

Please complete the form below if you’re willing to share your experience for possible inclusion in future NBTS content. We invite you to only answer the questions that fit your circumstances.

Name:(Required)

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Where are you from?(Required)

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Your Connection to Brain Tumors

Please share your connection to brain tumors.(Required)

Other connection to brain tumors:

Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

Other diagnosis (or unknown):

Are you comfortable sharing your experience with NBTS for possible inclusion in future content (e.g., Share Your Story page, social media, NBTS’s blog, etc.)?(Required)

When you were first diagnosed, what do you wish you had known about health insurance and/or Medicare?

What has helped you navigate health insurance and/or Medicare? What actions or strategies have you implemented?

If another patient told you they were struggling with health insurance or Medicare matters and asked for advice, what would you share with them?

How do you keep track of medical bills, insurance claims, and related paperwork? Do you have any tips for staying organized?

Health Insurance Questions

Have you had to communicate with your insurance company regarding your coverage? If so, what was that experience like?

Have you faced any denials of coverage for treatments or medications? If so, what steps did you take to appeal those decisions?

Were there any unexpected costs that insurance didn’t cover? How did you handle those expenses?

Have you had to change your insurance policy or provider since your diagnosis? If so, what prompted the change and how did you manage it?

Are there any resources that you have found particularly helpful in managing your insurance and treatment costs?

Medicare Questions

Did you enroll in Medicare after the 24-month waiting period from qualifying for Social Security Disability Insurance?

Have you encountered any gaps in coverage? If so, how have you managed these gaps?

How did you educate yourself about your Medicare benefits and what resources were most helpful?

Have you experienced any denials of coverage? If so, what steps did you take to appeal these decisions?

How has Medicare influenced your treatment choices or access to care? Have you had any issues with getting referrals to specialists covered under Medicare?

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