Share Your Travel Tips With NBTS

Many people with brain tumors need to travel to reach specialized hospitals or clinical trials. Others may want to travel recreationally between treatment cycles. Whether it’s a short drive or a long flight, traveling while managing symptoms or recovering from treatment can be challenging.

National Brain Tumor Society wants to hear from you. We are looking for your practical tips and honest experiences to help us create a guide for other patients and caregivers. Your knowledge can make someone else’s next trip a little easier.

Name:(Required)

First Last

Email:(Required)

Where are you from?(Required)

City State Country

Are you comfortable sharing your experience with NBTS for possible inclusion in future content (e.g., Share Your Story page, social media, NBTS’s blog, etc.)? Your quotes would be attributed to your first name and last initial.(Required)

What was the hardest part about traveling after a brain tumor diagnosis? For example, it might have been managing fatigue, keeping track of medications, or navigating busy airports. Did anything help to make it less challenging?

What items do you always pack to make your trip more comfortable?

How did you determine the most appropriate lodging for you? Did you use any discounted lodging or a nonprofit organization like Hope Lodge or Ronald McDonald House?

Travel expenses can quickly add up. Do you have any tips for lowering costs?

For people with physical symptoms such as balance issues or seizures, what helps you or your loved one feel safe while traveling?

How do you handle meals and snacks while away from home, especially if you have a specific diet or deal with nausea?

What medical information do you keep with you while you are away from home?

Have you had to fly with medical equipment or liquid medications? What was your experience with security, and do you have tips to make the process smoother?

How do you manage your energy levels during a trip? Do you have a strategy for resting before or after you arrive?

Have you ever requested assistance (like a wheelchair at the airport or a late checkout at a hotel)? If so, how did that help you?

What is one thing you wish you had known before your first trip after your diagnosis?

Is there anything else you would like to share?

Your Connection to Brain Tumors

Please share your connection to brain tumors.(Required)

Other connection to brain tumors:

Which tumor type best describes your diagnosis or the diagnosis of your family member or friend?(Required)

Other diagnosis (or unknown):

Cookie Policy

Main Menu

MyTumorID®

Get Support Now

Research Advocacy

MyTumorID®

Get Support Now

Research Advocacy

Share Your Travel Tips With NBTS

Your Connection to Brain Tumors

Stay Informed & Connected