News

Head to the Hill 2018: Brain Tumor Advocates Raising Their Voice The weather report in D.C. threatened rain during this year’s Head to the Hill 2018. And yet, the weather held for over 200 advocates coming from 38 states and Washington, D.C. Many of our advocates joined 457 teams and 350 brain tumor survivors on the May 6, Race for Hope DC. The 21st year of this […] May 14, 2018

Beating the Odds Thanks to Research Funding: Greg’s Story After an otherwise-healthy and vibrant 24-year old newlywed was diagnosed with an aggressive brain tumor and given just two-to-three years to live, a new clinical trial – based on NBTS-funded research – provided hope and helped beat the odds. “Temozolomide is what it is: a chemotherapy,” says Greg. “This means constantly feeling drained of your […] November 13, 2017

Guest Blog: The Powerful Platform Offered by National Brain Tumor Society “It is very unlikely that you will not have a recurrence,” my neuro-oncologist said softly, leaning in to fold his hands together, interlocking his fingers, “but you have many positive prognostic indicators in your favor, including your age, IDH1 mutation status, and general good health.” With this information—vague and uncertain to a newly diagnosed patient, […] November 7, 2017

From the CEO’s Desk: Let’s Lean In During Childhood Cancer Awareness Month About this time last year, the National Brain Tumor Society was down in Washington, D.C. at the famous National Press Club with a number of partners and collaborators to officially announce the launch of “Project Impact: A Campaign to Defeat Pediatric Brain Tumors,” our new fundraising effort to help resource the Defeat Pediatric Brain Tumors […] September 13, 2017

Guest Blog: Not Your Average “Joe” – Connecting with Your Members of Congress Rich Paisner is a 12-year astrocytoma survivor and a Massachusetts brain tumor advocate. Rich lives in Newton, MA with his wife and three daughters. “Hi, I’m Joe. I’m so happy to be here.” After a series of calls and emails, those were the first words we spoke to one another. I’m pretty sure I won’t […] July 26, 2017