News

Ependymoma Survivor Inspires Action at Head to the Hill Shawn W. never imagined his brain tumor experience would lead him to Capitol Hill, sitting across from a congressman and making a direct impact on legislation. But in May 2024, that’s exactly where he found himself — telling his story, advocating for the brain tumor community, and witnessing firsthand how personal experiences can drive real […] March 18, 2025

Former Caregiver Embraces Hope and Takes Action In the fall of 2008, Bridget’s husband, Rich B., unknowingly drove through red lights on two different occasions, found himself lost while driving to work, and could not remember how to get to a meeting in the same office building he had worked in for 24 years. He was confused and very scared. He met […] April 3, 2024

Your Advocacy in Action in 2023 Every year, NBTS advocates for changes to public policy that would help get us closer to our vision: to conquer and cure brain tumors — once and for all. Thousands of volunteer advocates, like you, from all fifty states and D.C. are powerful and influential by urging elected officials to support NBTS’s policy agenda. You […] January 10, 2024

Neuro-oncologist Advocates for Brain Tumor Community at Head to the Hill After three years of attending Head to the Hill virtually due to the pandemic, neuro-oncologist Dr. Nicholas Blondin is counting down the days to the event’s return in person to Capitol Hill this May 8-9. As a neuro-oncologist and the lead principal investigator of GBM AGILE at Yale Cancer Center and Smilow Cancer Hospital, Dr. […] March 27, 2023

Son Advocates on Capitol Hill to Honor Mother Nearly one year after losing his mom to glioblastoma (GBM), Shawn joined his brother and father in D.C. for Head to the Hill 2019. Their experience would prove to be powerful and energizing for their grieving family. “Attending Head to the Hill our first year was all about sharing my mom’s story after she passed […] February 16, 2023