Pediatric Ependymoma Patient’s Attitude Inspires Community Two-year-old Kevin M. lies in his hospital bed watching his beloved Puppy Dog Pals show, oblivious to the monitors beeping around him as a pediatric patient with ependymoma. His parents, Danielle and Duane, are nearby, trying to keep the toddler entertained between the pokes and prods that come with being in the hospital. Kevin’s nurse […] September 28, 2023
“Deadlift Diva” Honors Daughter’s Memory by Hosting a Community Fundraiser When Jesse C. and his older sister LaTosha C. decided to host a charity powerlifting meet in memory of her daughter, who passed away nearly 20 years prior from a brain tumor, Jesse knew he wanted to hit his 700-lb. deadlift goal at that meet. On the day of the meet, the energy in the […] September 8, 2023
World Class Hospitals Join DNA Damage Response Consortium to Bring Forward New Treatments for Adults and Children with Brain Cancer Researchers from St. Jude Children’s Research Hospital, NYU, UCSF, and the University of Minnesota join National Brain Tumor Society and Yale-led Initiative Today, the National Brain Tumor Society (NBTS), in partnership with Yale Cancer Center, announced new partners for its DNA Damage Response Consortium. Joining the initiative are world-class experts in adult and pediatric neuro-oncology […] March 28, 2023
In Sickness and In Health: Becoming Julio’s Caregiver Julio and Liz P. ventured to Turks & Caicos earlier this year to celebrate a couple of friends turning 40. Julio, who has anaplastic ependymoma, suffered a focal seizure while snorkeling. While swimming in the crystal clear turquoise water just offshore, he experienced an aura that indicated he was about to have a seizure. He […] November 10, 2022
New Brain Tumor Clinical Trials: January – June 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for primary brain tumor patients*. To learn more about each trial, and to contact the […] July 5, 2022