Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023
Your Advocacy in Action Every year, NBTS sets a policy agenda that supports the vision of our organization: to conquer and cure brain tumors, once and for all. Advocates like you push our priorities forward by emailing your members of Congress, sharing our action alerts on social media, and participating in virtual meetings and events like Head to the Hill. Thanks to […] January 3, 2023
Katie & Pete’s Story: Navigating Financial Challenges Following a Glioblastoma Diagnosis Katie M. sat anxiously in the Cleveland-area hospital alongside her husband, Pete, who had been recently diagnosed with a brain tumor. A million thoughts ran through her head as Pete was in the ICU awaiting surgery in June 2018. A shrill ring interrupted her thoughts — her husband’s boss, from the architecture firm he worked […] October 4, 2022
Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish. “I got […] August 11, 2022
Turning Lemons into Lemonade After a Glioblastoma Diagnosis “Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area. Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] August 4, 2022