Cultivating Connections: The Role Creative Expression Plays in the Brain Tumor Community Christina C. turned to writing poetry moments after receiving her grade 3 anaplastic astrocytoma diagnosis to try to process the whirlwind of emotions. This form of creative expression helped sustain her when she couldn’t sleep and as she underwent surgery, fertility preservation, and treatment. “While I was sitting in the emergency room on August 4, […] March 19, 2024
11 Ways to Find Community Through the National Brain Tumor Society Patients living with a brain tumor and their care partners often encounter isolation and loneliness throughout their brain tumor experience. In the wake of a diagnosis of a rare disease like a brain tumor, it may seem like no one understands what you’re facing. You can find community with others who truly understand and gain […] March 14, 2024
Seeking a Second Opinion Before Brain Surgery: What to Know Receiving a brain tumor diagnosis can be overwhelming and intimidating. The gravity of the situation and the complexity of treatment decisions can leave you feeling lost and uncertain. In such challenging circumstances, making well-informed decisions becomes paramount. One vital step to consider is seeking a second opinion before brain surgery when possible. “My second opinion […] February 26, 2024
Psychologist Shares Personal Story of Caregiving and Loss More than 10,000 Americans are estimated to succumb to glioblastoma (GBM) each year. Jeanne Herzog had the inconceivable misfortune of caring for her two favorite guys — her dad and husband — before they passed away from this devastating disease decades apart. Between Jeanne’s personal experience as a two-time brain tumor caregiver and her professional […] January 12, 2024
Guest Blog: Finding Solace in Art and Running After My Sister’s Death I’ve been an artist since I was a little kid. In 2011, I moved from San Francisco to New York to pursue a Master’s in Art Politics at the Tisch School of the Arts at New York University. I’ve been here ever since, working in the arts and doing my own socially engaged projects. I’ve […] November 17, 2023