News

In Sickness and In Health: Becoming Julio’s Caregiver Julio and Liz P. ventured to Turks & Caicos earlier this year to celebrate a couple of friends turning 40. Julio, who has anaplastic ependymoma, suffered a focal seizure while snorkeling. While swimming in the crystal clear turquoise water just offshore, he experienced an aura that indicated he was about to have a seizure. He […] November 10, 2022

Tips for Coping with Grief Around the Holidays The holidays can be particularly challenging for bereaved members of the brain tumor community because of the cultural emphasis on making memories with family, gathering with loved ones, and being thankful and joyful. This time of year can also cause heightened emotions because of the reminder of activities, traditions, and celebrations one may have enjoyed […] October 31, 2022

How Scanxiety Impacts the Brain Tumor Community Ann S. glances at the clock beside her bed and realizes she still has three more hours before her alarm goes off. She struggles with sleep, knowing her MRI is at 7 a.m. She has been counting down the days for the past week, her anxiety growing as the date inches closer. Ann undergoes an […] October 18, 2022

How Palliative Care Can Support the Brain Tumor Community A brain tumor diagnosis is life-altering. For the people diagnosed and those who love and care for them, brain tumors can present many challenges and troublesome symptoms that do not need to be endured in silence or managed alone. Some people may benefit from support that neuro-oncology alone may not address. Examples include:  An adult […] October 7, 2022

Financial Planning 101 After a Brain Tumor Diagnosis Katie and Pete M. faced daunting medical bills and other expenses after Pete’s glioblastoma diagnosis. Were it not for a spaghetti dinner fundraiser and crowdfunding from family and friends in those early months, the couple would have been forced to sell the home they were so excited to move into only months prior.  Pete and […] October 5, 2022