News

Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023

New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023

How to Support Grieving Brain Tumor Community Members While grief is a universal experience, individuals process their grief differently. This can make it challenging for loved ones to know how best to support someone who is grieving because what worked for one friend or family member may not work for another loved one.  Holly Gainsboro, the facilitator of NBTS’s Grief Support Conversations, shares […] January 19, 2023

Managing Scanxiety: 7 Tips to Help Patients with a Brain Tumor Cope with Scan-Related Anxiety As NBTS addressed in an earlier blog post about scanxiety, scanxiety is common, and most patients with a brain tumor will experience scan-related anxiety. While scanxiety can’t be avoided altogether, there are ways to manage the symptoms.  “For those living with a brain tumor, MRIs often lead to one’s diagnosis and play an integral part […] January 17, 2023

Guest Blog: A Patient and Philosopher Goes to the Biggest Brain Tumor Research Conference of the Year Glioblastoma patient and NBTS Board member, Adam Hayden, reflects on attending the 2022 Society for Neuro-Oncology Annual Meeting The Philosopher-Patient I was diagnosed with glioblastoma in the final year of my graduate studies, ironically specializing in the Philosophy of Science. Ironic because what could be more absurd than a philosopher with brain cancer?! The brain […] December 16, 2022