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From Classroom to Hospital Room: Elsa Navigates School After Diagnosis Elsa’s life took an unexpected turn on Feb. 15, 2019, when she began experiencing flu-like symptoms, severe headaches, and high fevers. As a six-year-old, her family assumed it was a typical childhood illness. However, when her condition worsened, and she experienced paralysis on her left side and vision loss, they knew something was seriously wrong.  […] September 18, 2023

“Deadlift Diva” Honors Daughter’s Memory by Hosting a Community Fundraiser When Jesse C. and his older sister LaTosha C. decided to host a charity powerlifting meet in memory of her daughter, who passed away nearly 20 years prior from a brain tumor, Jesse knew he wanted to hit his 700-lb. deadlift goal at that meet. On the day of the meet, the energy in the […] September 8, 2023

Patients and Care Partners Share 17 Tips From Their Brain Surgery Experience You just heard, “There is a mass in your brain. We need to schedule surgery.” The thought of having brain surgery can be intimidating and overwhelming, especially when you’re not sure what to expect. In this blog post, find tips from patients and care partners on what might help make the brain surgery process easier […] August 29, 2023

From College Challenges to Clinical Trials: A Story of Resilience Little did Julia V. know that her troubling symptoms as an undergraduate were a precursor to a life-altering brain tumor diagnosis in college and a profound understanding of the patient experience as a health care professional years later. During her junior year at Washington University in St. Louis, Missouri, majoring in microbiology and anthropology, Julia […] August 25, 2023

The Importance of a Will Everyone needs a will, yet only about half of Americans have one. Understandably, there are many reasons we put off creating this important document — it may seem too logistically complex or upsetting to think about. Yet regardless of your current situation, having a will offers numerous benefits, including peace of mind that you are prepared […] August 18, 2023