News

Managing Scanxiety: 5 Ways to Reduce Scan-related Anxiety Through Self-Care In addition to implementing tips shared in an NBTS blog post last month, taking care of the mind and body can help foster strength and resilience to face scanxiety. Treating yourself with tenderness and compassion while managing your energy can make a positive difference. Self-care can look like eating a nutrient-dense diet, getting plenty of […] February 7, 2023

Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023

New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023

How to Support Grieving Brain Tumor Community Members While grief is a universal experience, individuals process their grief differently. This can make it challenging for loved ones to know how best to support someone who is grieving because what worked for one friend or family member may not work for another loved one.  Holly Gainsboro, the facilitator of NBTS’s Grief Support Conversations, shares […] January 19, 2023

[White Paper] Assessing Uptake of Remote Consent for Clinical Trials: Opportunities to Reduce Patient Burden A white paper from the National Brain Tumor Society and the LUNGevity Foundation Executive Summary While the COVID-19 public health emergency has caused major disruption to many clinical studies, one positive outgrowth has been the opportunity afforded trials sponsors, investigators, and regulators to implement elements of decentralized trials in on-going clinical studies. Decentralized clinical trials […] January 18, 2023