News

Defeat GBM Research Collaborative: Progress Report (2018-2019) Over the past five years, the Defeat GBM Research Collaborative has stood as a testament to the power of ideas, collaboration, and the philanthropic partnership between patient advocacy nonprofits like NBTS and a dedicated community of supporters.  When we launched Defeat GBM as our flagship research initiative in 2014, we sought to do something different. […] February 10, 2020

Can Newly Approved “Tissue Agnostic” Drugs Benefit Pediatric High-grade Glioma Patients? Recently, the U.S. Food and Drug Administration (FDA) granted accelerated approval* to the drug Rozlytrek (entrectinib, Genentech/Roche**) as a treatment for patients, 12 years or older, whose tumors have a specific genetic defect known as an “NTRK gene fusion.”*** This is now the second drug that the FDA has approved to treat patients with this […] September 16, 2019

Guest Blog: “I would have given anything to trade places with him” On a family vacation in 2011, Mac tried to catch a seagull. Using his boogie board to shield his movements, he inched his way across the sand, closing on his target. With the determination and strong-will that defined him, Mac patiently stalked his target for 20 minutes, taking great care with each step as to […] September 5, 2019

Mavericks & Lions Wanted: Remembering Senators John McCain & Ted Kennedy and America’s Stake in the Fight Against Glioblastoma What we can learn from Senators John McCain and Ted Kennedy on the shared anniversary of their respective passings, both from glioblastoma August 25, 2019

A Missing Link to Glioblastoma Growth? An enzyme that serves as a link between oncogenes and the lipids that make-up cells’ membranes may be an important new drug target to treat glioblastoma and other tumors Glioblastoma, like all cancers, develops and progresses as cells begin to multiply and grow out of control, forming a tumor.  Mutations to a protein known as […] August 6, 2019