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Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023

New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023

Guest Blog: A Patient and Philosopher Goes to the Biggest Brain Tumor Research Conference of the Year Glioblastoma patient and NBTS Board member, Adam Hayden, reflects on attending the 2022 Society for Neuro-Oncology Annual Meeting The Philosopher-Patient I was diagnosed with glioblastoma in the final year of my graduate studies, ironically specializing in the Philosophy of Science. Ironic because what could be more absurd than a philosopher with brain cancer?! The brain […] December 16, 2022

Katie & Pete’s Story: Navigating Financial Challenges Following a Glioblastoma Diagnosis Katie M. sat anxiously in the Cleveland-area hospital alongside her husband, Pete, who had been recently diagnosed with a brain tumor. A million thoughts ran through her head as Pete was in the ICU awaiting surgery in June 2018. A shrill ring interrupted her thoughts — her husband’s boss, from the architecture firm he worked […] October 4, 2022

Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish.  “I got […] August 11, 2022